Alzheimerglowers

Come Glow With Us


(Site was created on Oct 9th 2006 - It is now used as reference for our cause. Last updated Sept 2019 although monitored regularly.)

 

This site is dedicated to Jennifer and all primary caregivers around the world...

 

 

Welcome to our "Alzheimerglowers" web site!

 

 

Welcome to Glow!!!
 
Please visit our brand new site for 2011 and beyond
 
It honours ALL caregivers... 
 
 

The Glow Campaign began in 2006, initially in recognition of the 100th anniversary of the discovery of the plaques and tangles associated with Alzheimers. 
It was set up to recognize the contribution of the unpaid primary caregivers providing care for their loved ones suffering from AD and other dementia’s.
The founders - two caregivers from opposite ends of Canada - quickly determined the role of caregivers was as diverse as those in their care. The need of caregiving went far beyond dementia care. Anyone suffering from a long-term illness eventually needs caregiving - whether professional or home based. Many elderly people being of sound mind may also need some help from their family or community. 
Whether you provide a meal - respite - or are chief cook and bottle washer - you are a caregiver. 
We recognize that the role you play depends on what is needed at that moment - chauffeur, nurse, mother, financial manager, activity director, or simply a walking talking memory keeper. 
You are often alone so you are it. 
You meet that role - not because of the money - there is little or none - but out of love. 
And you do it day in and day out because you care.
The goal of the Glow campaign is to raise awareness of your contribution and to say thank you. 
In the past five years we have lit up around the world - across Canada - the United States, England, Scotland, Ireland and Australia.

On October 1 - please place one string of Christmas lights in a prominent spot. Turn them on at 8 p.m. 
Every hour more lights will glow as it turns eight in each time zone.
We will pass the spotlight through all the time zones and around the globe.
 
 

Shine a light on all caregiving. 
Show us your support. 

You don’t have to be a caregiver to take part - you just have to care! 


It is with a heavy heart that we announce the passing of one of our co-founders - Jennifer.
After years of giving care to her mom - she was eventually in need of care as her battle with cancer came to an end. 
Her daughter Chrissy provided that care and she takes up the Glow cause in her mom’s honor. 

The torch has been passed on....

 

Help us make the 2011 Glow the brightest yet... 
 
 
Let us post your lights right here on our site!!!!
 
-forward a photo with your FIRST name, city/town, and country to alzheimerglowers@lycos.com
 

 

We want to thank each of you for bringing awareness to all primary care givers. Remember that one candle can light another so every string of lights can join another to give light and hope to the hundreds of thousands of primary care givers who suffer in darkness with their loved one.

 

 

Please, feel free to use your email to share our challenges and encourage your family, friends, co-workers, neighbours to 'glow' at 8 pm every October 1st.


 


While the following forums are for caregivers of people with AD - there are other web-based caregiving sites you can access if your loved one suffers from another ailment. We recommend you do so as the support you receive can be invaluable. 
A special thank you goes out to the two sites mentioned for helping us spread the word about the Glow Campaign. 

Canadian Alzheimer Society forum: http://www.alzheimer.ca/forum/

American Alzheimer Association :http://alzheimers.infopop.cc/eve
 

 

 

 

 

 

Since January 2006 we have been members of the Alzheimer Society forum http://www.alzheimer.ca/forum/ and we have learned a lot about the hidden skills to cope with a loved one with Alzheimer’s through others caring and sharing in the forum. We too have had the opportunity to share our struggles and strengths in dealing with a loved one being eclipsed by Alzheimer’s.

 

 

There are books and other aids to help inform us of the devastation of this disease and information on how we can better serve the loved ones we are trying to give quality of life to but the behaviours, wants and needs of the afflicted must be understood and the primary care giver is many times thrown into the role and foreign life-long struggles of dealing daily with these demands. Caregivers feel lots of despair with no place to turn as their turmoil turns into never ending tears.

 

 

You see, the focus is always on the afflicted, however, this disease claims two victims. It compromises primary care givers in all aspects of their lives; it can destroy other family relationships, destroy the primary care givers health, their careers, their retirements, their futures, their finances, their time, their mental and emotional well being and devours all their strength and resources and puts them into isolation and hopelessness.

 

 

The tears, depression, stress and feelings of being alone goes far beyond the afflicted but are passed on to the primary care givers.

 

 

We want to light their pathway and bring recognition to their endless efforts.  

 

 

The members of the Alzheimer’s forum (link in this site) can help many primary care givers by ordinary people like you and us, sharing experiences of what works and what doesn’t. It is a place to vent, share, learn, cry, and sometimes even laugh. This forum is a wonderful lifeline of hope and recognition that lights the plight of all primary care givers.

 

 

(A special thank you goes to the Alzheimer’s Society  of Canada for offering us their forum to find help and hope!)

 

 

We want to thank each of you for bringing awareness to all primary care givers. Remember that one candle can light another so every string of lights can join another to give light and hope to the hundreds of thousands of primary care givers who suffer in darkness with their loved one.

 

 

Please, feel free to use your email to share our challenges and encourage your family, friends, co-workers, neighbours to 'glow' at 8 pm every October 1st.

 

 

 

Thanks!

Christine, Prince George, British Columbia, Canada

Cindy, Arichat, Nova Scotia, Canada

 

 

 

 

This site is dedicated to the hundreds of thousands of unpaid primary care givers who sacrifice our time, energy, health, finances and sometimes our lives to lead our loved ones with dementias through the daily darkness of their illness. We are their voice, their hope and their future and through our eternal bonds of love we will be given the strength to endure....We hold a torch up to light the way for our loved one's journey with dementias.

 

 

Please join us......

 

Dementia cannot hide in the darkness as long as we choose to light the way.

The challenges we face are multifaceted and never ending. In 2006 Cindy (Arichat, Nova Scotia) and Jennifer (Maple Ridge, British Columbia) joined hands across Canada to shed the spotlight on the struggles of all care givers.

 

They met on the Alzheimer’s Society of Canada forum:

 http://www.alzheimer.ca/forum/

  • ANNOUNCEMENTS / AVIS
  • FORUM: FOR FAMILY CAREGIVERS / POUR LES AIDANTS ET LES FAMILLES
  • FORUM: FOR PEOPLE WITH ALZHEIMER’S DISEASE / POUR LES PERSONNES

          ATTEINTES DE LA MALADIE  D’ALZHEIMER

  • FORUM: FOR HEALTH-CARE PROFESSOINALS / POUR LES PROFESSIONELS DE LA SANTE