Seems it has been awhile since I have been here I have almost become a stranger. There is so much to catch up on, I don't think I can even begin to remember the time behind me. Today we went to our local Memory Walk. This year I have been so busy I only raised $1059.00, but as they say every dime counts. I got to visit with Judee, I miss her, wish we could visit more often. Got to visit with Patty, Rebecca, Angel and Rob, seems like everyone else was strangers at least in my mind. Judee, Austin and I walked about a half mile. Jim and Amy are here from St. Louis today doing some footage for a documentary. His mom has EOAD too, I can't wait too meet her, I bet we will have alot in common. There is so much to say but for now, we will call it a day.
Looks like I am failing at keeping up with doing my journal here, no real excuses other than I am just not able to do it. Sounds so funny that I can't keep up with writing words on a page. I guess I will go to a bi-monthly entry now and see if I can keep up better that way.
So much has happened not sure where to begin - I cancelled my two speaking engagements for Chicago and Canada, just too tired. We finally got moved here back at the farm and it is really so relaxing and the air is so fresh!!! I look forward to next spring when I can really make the flowers look good.
I was contacted by Jim Dryer who is a Producer at PBS about filming a documentary along side of his mother that was also diagnosed with EO when she was 49 years old. He said she is now 54 and still very high functioning. He came across my book and found our story to be an inspiration. He called me yersterday and offered us tickets to the St. Louis Cardinals Game. I told Austin and he is so excited! This is his first BIG game to see in person.
I did well on fundraising this year, still hope to raise alittle more with the Forget-me-nots.
Now as for me, I think I am doing pretty good considering the move and everything. I still have my real tired days and then my days that I feel really good and you would think there is nothing wrong with me. I still struggle at communication. It isn't like here where I can sit and take my time and erase until I say what I want. I stubble alot on words and even make up new ones! I have been eating so much lately! I think it is the medicine. I just can't quit craving sweets. Maybe once things settle down for us here we can get back on a better routine with meals and that will help.