Hope For Sydney

Living on Faith.....Looking for a Miracle

Parenting from a "HOPE" perspective allows us to lead with courage, authenicity and purpose.

Sydney is a beautiful 8 year old who was born with a genetic mutation which causes Dravet's Syndrome, (Dravet syndrome) previously called Severe Myoclonic Epilepsy of Infancy (SMEI). There are less than 500 confirmed diagnosis in the world. Although many more are suspected to be un-diagnosed or mis-diagnosed.  

There is no known cure and she will never outgrow it.  This syndrome causes every type of seizures as well as progressive mental and physical developmental delays.  Many Dravet kids are non mobile, non verbal or both, and severely retarded before puberty.

Sydney is on the moderate side of the delay spectrum thus far, PRAISE GOD!

Sadie is Sydney's little sister. She has an unrelated neurological dysfunction called Severe Apraxia, which prevents her from talking. 

I stay home to care for the girls while my husband works as a Deputy Sheriff, assigned to the Fugitive Apprehension Unit.  We live in Kentucky and dedicate our lives to helping other special needs famlies and giving the best possible care to Sydney and Sadie. 

Best Wishes to you and yours!   

The Nelson's


 

Feel Free to contact me if you have questions.  HopeForSydney@hotmail.com

Happy moments, Praise God.
Difficult moments, S
eek God.
Quiet moments, W
orship God.
Painful moments, T
rust God.
Every moment, T
hank God.

You can click this icon if you would like to donate to Sydney's Medical Bills or Sadie's Therapy Bills. Thank you VERY much!

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