Sunfish Out of Water

Melissa's Journey...

On Dysautonomia...

This is just a sampling.  Most of the sites have their own links to extensive additional info as well.

Dysautonomia Information Network http://www.dinet.org

National Dysautonomia Research Foundation http://www.ndrf.org

Dysautonomia Youth Network of America http://www.dynakids.org

National Institute of Health (on Dysautonomia) http://www.ninds.nih.gov/disorders/dysautonomia/dysautonomia.htm

Mayo Clinic (on Autonomic Neuropathy)  http://www.mayoclinic.com/health/autonomic-neuropathy/DS00544/DSECTION=1

Vanderbilt Autonomic Dysfunction Center http://www.mc.vanderbilt.edu/root/vumc.php?site=adc

 

On Gastroparesis...

On Other Health Issues...

American Association of Sleep Disorders (on Sleep Apnea) http://www.sleepapnea.org/info/index.html

American Urological Association (on Neurogenic Bladder) http://www.urologyhealth.org/adult/index.cfm?cat=03&topic=109

United Mitochondrial Disease Foundation http://www.umdf.org  (not a certain diagnosis for me at this point but something that has been suggested & corresponds with some testing I've had)

The Oley Foundation - support & information organization for those on long-term HPEN (total parenteral or enteral nutrition, aka IV nutrition or tube feeding) http://www.oley.org

 

On Invisible Disability/ Chronic Illness...

The Spoon Theory - an EXCELLENT read regarding the reality of living with chronic illness (written by a young woman with Lupus)  http://www.butyoudontlooksick.com/2006/02/the_spoon_theory.php#more

National Chronic Invisible Illness Awareness Week http://www.invisibleillness.com

Rest Ministries http://restministries.org

 

 

On Other Assorted Items...

Syracuse Crew - see what the "little" brother Tim is up to http://www.suathletics.com/index.asp?path=crew&tab=mens

Independent Lens - a great film series on PBS http://www.pbs.org/independentlens/

Beautiful Lengths - a program (sponsored by Pantene) that collects hair donations (at least 8") to make wigs for those who need them http://www.pantene.com/en_US/beautifullengths/index.jsp

Johns Hopkins University, my alma mater http://www.jhu.edu

National Public Radio http://www.npr.org

 

 

Recent Updates

No recent entries

Share on Facebook

Share on Facebook

Send to a friend


2

3