We are going to be closeing Stephanie's CB site down soon and will be opening a New site. If you are a follower of Stephanie's Angels Foundation and Stephanie CB page, Please send me your e-mail address to slojsw@aol.com and I will send you the new site as soon as I get it set up. This site will have all the sites we own in one so you all do not have to go jumping all over the web to find us. It will also have our new yahoo group Caring Angels. We are very excited about this change because it will be about the kids we have become so close to over the years and will be about what we can do as a whole to help other children like them. Just send me your email address if you are a follower and I will make sure that you get first invites.
Blessings to all
To be Able to view Stephanies Angels you will need to send me a e-mail. This is due to problems we have had, Due to harrassment of our Children on this site.
Susan
Stephanie Ott’s Angels for
Aplastic Anemia Foundation
Stephanie was originally diagnosed with ITP and told children usually grow out of this. In the fall of 2001 our lives where forever to be changed when a bone marrow aspiration was preformed at West Virginia University Hospital. We where told Stephanie has Aplastic Anemia.At the time we had no idea what this was but over the next two and half years came to find out this was the beginning of our worst nightmare. Stephanie was taken to Duke University where she was put on the list for a bone marrow transplant. However no match could be found and all they could offer was a 15% chance to survive a cord blood match of 5/6.Thruout the course of this disease Stephanie received hundreds of blood and platelet transfusions. She received “ATG” (horse serum) and “ATG” (rabbit serum) with little effect to a cure. After countless hours of research and phone calls to all the top specialists we could find, our hand was forced in late November. Stephanie was taken to WVU and diagnosed with fungrial sinusitis. Our little girl was fighting for her life, so we made the decision to have her flown to Children’s Hospital of Wisconsin and put under the care of Dr. David Margolis, one of the best in this field of medicine. Stephanie was soon on the track to getting better, and now was the time for a haploidentical stem cell transplant. Stephanie received her cells on February 14,2004 from her father, and soon she was on the road to a new life. The cell lines we watched for over 2 years started to come up to normal around the 1st of March. But our happiness was short lived. Around the 15th of March we learned of another virus, this Adenovirus is deadly to people that have haploidentical transplants and have no T-cells. Stephanie fought this virus for over 3 months with both courage and determination beyond any imagination. On May 19th at 8:45pm the pain endured by our little girl could no longer be accepted and the Lord sent her angel to lead her home.
Doctors that specialize in Aplastic Anemia
You can link to the hospitals
DR.DAVID MARGOLIS..(HIGHLY RECOMMENED)
Childrens Hospital of Wisconson
Phone (414)- 456 - 4154 Fax (414)-456-6543
DR. NEIL YOUNG
Phone (301)-496-5096
DR. ALLEN CHEN
Phone (410)- 955 –0432- Fax (410)-955-0028
DR. JOANNE KURTZBERG
Phone (919) - 688-1100 - Fax (919)-668-1183
DR PAUL MARTIN
Phone (919)- 668-1100 - Fax (919)-668-1180
DR.JEFFREY HORD
Childrens Hospital In Akron Ohio
Phone (330)-543-3805
Dr. Stephen D. Nimer - Dr. Hugo R. Castro
Sloan-Kettering Memorial Hospital
Phone (212) 639-7871 - (212) 639-8197
Ulrike M. Reiss, MD
Phone Phone: (901) 495-4753 - FAX: (901) 495-2952
WE HAVE OPENED AN ACCOUNT FOR ANYONE WHO WOULD LIKE TO DONATE TO THIS FOUNDATION. YOU MAY GO TO ANY JPMORGAN CHASE BANK, AND THE ACCOUNT NAME IS UNDER JEFFREY OTT FOR STEPHANIES ANGELS FOUNDATION. 100% OF ALL FUNDS ARE DONATED TO INDIVIDUAL FAMILIES WITH CHILDREN THAT HAVE APLASTIC ANEMIA AND OTHER DISEASES. WE PAY ALL COSTS OF THIS ACCOUNT OURSELVES, AND ANYONE DONATING UPON REQUEST WILL BE SENT AN ACCOUNT SUMMARY. TO DATE WE HAVE DONATED OVER $15,800.00 DOLLARS AND WE CURRENTLY ARE PLANNING A BONE MARROW/BLOOD DRIVE FOR EARLY SUMMER. MAY GOD BLESS EVERYONE WHO HAS BEEN WITH US AND CONTINUES THE FIGHT TO HELP OTHERS IN OUR PRECIOUS ANGELS NAME.
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