And while Hospice does not have a website (that I know of ), they are worth mentioning again and again.  What a tremendous resource for talking with older children about your T18 baby before and after your little one is gone - or if you are one of the lucky ones - when you bring your baby home, not to mention coping with your own grief.  I NEVER would have thought I'd ever step foot inside a counselor's office for anything, much less talk about how wonderful he/she is, but here I am...

http://geocities.com/tabris02

"A how-to guide for carrying a pregnancy to term after diagnosis of a condition fatal to the baby."  An amazing resource for thinking about the time you have with your baby and making as many memories as possible...she offers a few laughs along the way and goodness knows I needed them (still do).

http://trisomy18support.org

This is a phenomenal support group for parents of a trisomy 18 child...The site provides facts and information on T18 as well as community boards on which you can post questions, thoughts, feelings or just read.  There are private boards for those who chose to carry to term as well as for those who chose to say goodbye early.

I'll admit, I didn't spend a lot of time out there while I was pregnant with Hailey - TOO MUCH information that may or may not have been relevant and I got a little overwhelmed and freaked out, but I've spent a lot of time there since we lost our little girl.  There are many who spend time there while pregnant, asking questions and seeking support...I kind of wish now that I had, a wonderful group of ladies (and men, but let's face it, it's the ladies that do most of the 'talking') out there.  Great resource and support now as I figure out my 'new normal.'  (By the way, there really isn't any such thing as normal).

http://www.geocities.com/wilsfordmindy

A wonderful site about Abigail Wilsford, the daughter of a fellow Trisomy18support.org Mom.  Both Abigail and her Mom are amazing.  Mindy has a gift with words and has written an allegory called The Journey, describing what grief is like.

http://t18moms.com

T18Moms can put you in touch with other support sites as well as families (you can find Princess Hailey there!).

I have an amazing book to recommend, as well...."When Bad Things Happen to Good People" by Harold S. Kushner.  Mr Kushner is a Jewish rabbi whose son died as a result of a premature aging disease.  What phenomenal insight and at last an answer to the question "why Hailey?!"  The basic gist is that God did not have a plan that involved my little girl dying because she couldn't breathe (why should an innocent little baby suffocate?), but rather that Hailey died because she had Trisomy 18, a chromosomal abnormality that sometimes just happens.  God cannot change the course of our lives, but he is 'there' for us.  I am sure I am not doing his book nor his 'message' justice...so if you are asking yourself "why?," please check it out.  It is a short, easy read and just makes so much sense.  I do not have a strong background in any faith, but Rabbi Kushner does, and he does an incredible job sharing his belief in a benevolent, but not all powerful, God.