My Story - "Faith Builds Strength"
Hi my name is Sheila and I was, born with Cerebral Palsy which affects motor function, usually occurs at birth or shortly thereafter. I think it is much easier to be born with a disability than to acquire one later in life. As a result of my Cerebral Palsy, I had countless surgeries, which helped me to gain strength in my legs and gave me the ability to get around on crutches; which gave me more independence. I live my life as anyone else and let nothing get in the way of me leading a fully productive life.
I can readily reflect upon how I am perceived by those who are not disabled and have not been around someone with a disability. My mom and dad treated me no differently than my brothers, kids would tease me and try and trip me in the hallways at school. I often wondered what it was like to run and jump and play like my brothers. But over the years I began to realize that I could do a lot of the same things I just had to go about it differently. I am very blessed in being more independent than I ever dreamed! By God's grace, I work (part-time), and live alone with a wonderful outside support team. I am active in my church, I enjoy helping people with disabilities live independently. As you can see, not much grass grows under my feet!!
Throughout my life, I have encountered many and varied reactions to my disability -- ranging from great acceptance to tremendous unease.
When I first meet someone, I like to anticipate his or her reaction. Some people see me as a "person" who happens to be disabled and are quite comfortable around me. I enjoy being with those who accept me as "Sheila".
I have many friends who see me as a whole person and can look beyond my disability -- many times forgetting it. I am able to be myself! When I do need assistance, all I have to do is ask. I have had a strong family base pushing me to be as independent as possible. with a sometimes hesitant but supportive mother wanting me to try, yet fearful I might fall. My siblings were great encouragers.
On the other hand, I can easily spot those people who are uncomfortable around me. Sometimes after being around me for awhile, some people "get used" to me and, thus, feel quite comfortable -- they forget my disability. One thing I stress is that I do not mind repeating something. In fact, this shows they care rather than nodding their head pretending to understand me.
For those who are uneasy around me I usually get one of two reactions -- "Oh, you poor thing!" or "You're just such an inspiration -- you're a saint to have overcome your cerebral palsy!"
I realize people mean well, but I see right through their insecurities. Think about the previous comments, which are usually said in a condescending manner. First of all, I'm not a "thing" -- I'm an individual, with the same thoughts, dreams, and feelings as anyone else. Secondly, I am perceived as being retarded, although I have a high school diploma.
For those who regard me as an "inspiration," I can respond in one of two ways. I can take the comment as a sincere compliment and thank God that He is using me as His instrument -- and I can genuinely say, "Thank you." On the other hand, I sometimes see it as an "off the cuff" remark. They do not know exactly what to say but they feel a need to say something. Those who say that I inspire them are probably thinking, "I'm glad I'm not like her" or "Boy, she goes through so much just to be here." Yes, it may take me longer to accomplish a task and I may do it in a different manner, but God has given me grace, patience, and a lot of humor!