Our Gift Of God

In July of 2005, we were blessed with the birth of our second son, Nathaniel.  There were complications during the birth and it was necessary to keep him in the NICU for his first week of life.  It was during this time various tests were run.  In his fifth day of life we were taken to a private room and it was gently explained to us that our son has a congenital birth defect of the brain called Agenesis of the Corpus Callosum, in which the band of tissue connecting the two hemispheres of the brain does not form typically in utero. 

We were given little information as to what this could mean, as the diagnosis has generally been considered rare, and we were scared.  We cried, as did everyone in the room.  The doctor told us we were going to have to wait and "see what he can do."  As the meeting ended Nate's NICU nurse that day approached both of us, and explained that over a decade ago her son had received the same diagnosis.  At that current time, she told us, he was a healthy teenager who was shy but on the honor roll in school.  She told us to take our son home and love him just as we had done with our first as an infant.  She said she did not want to give us false hope, but she wanted us to know that there is hope. 

The primary purpose of this site is to offer that same hope to another new parent.  Perhaps through our story you can find support and encouragement.

We hope to also use this website to keep friends and family updated on Nate's progress and to raise awareness of ACC.  As we work to develop this website, we are discovering that getting our thoughts together and sharing our story has been a blessing for us as well.

For those wishing to contact us regarding questions or comments about this website, please feel free to do so at ourgiftofgod@yahoo.com