This website is for anyone who is involved with a person with a Myeloproliferative Disease, consisting of:
Polycythemia Vera -- Polycythemia vera, a disease of the hematopoietic stem cells (cells that give rise to blood cells) is characterized by the overproduction of red blood cells by the bone marrow. This overproduction can lead to thickening of the blood, which can impair the function of the heart or the brain.
Essential Thrombocythemia -- Essential thrombocythemia (also called primary thrombocythemia), a disease that results in the overproduction of platelets by the bone marrow, generally affects people over 50. (Elevated numbers of platelets can also occur as a result of infection, iron deficiency, and other secondary causes.)
Myelofibrosis -- Myelofibrosis is a disorder in which fibroblasts, cells that are found in the bone marrow, produce too much fibrous or scar tissue within the bone-marrow space. When this happens, blood-producing cells are produced in fewer numbers and can be destroyed more rapidly, resulting in anemia, low platelet count, and a tendency to develop infections. The disease, which is most common in people between the ages of 50 and 70, often produces few symptoms initially, but when anemia develops, they may include fatigue and weakness and abdominal pain from an enlarged spleen. Myelofibrosis can occur by itself or in association with myeloproliferative diseases such as essential thrombocythemia and polycythemia, or in patients with myelodysplastic syndromes or acute myeloid leukemia.
Chronic Myelogenous Leukemia --Chronic myelogenous leukemia (CML) is an uncommon type of cancer of the blood cells. It's considered chronic leukemia because it usually progresses more slowly than acute leukemia, sometimes over the course of years. ( http://www.mayoclinic.com/health/chronic-myelogenous-leukemia/DS00564)
News Articles on Myeloproliferative disease 2008
This link has new information on some MPD's for 2008
Clinical Trials and other information. Worth checking out.
Also information on a new Clinical Trial of Jak2 Inhibitor
~Info~
TargeGen, Inc., +1-858-678-0760, fax, +1-858-678-0160, info@targegen.com
info@targegen.com
The Reason
This site exists because my husband has Polycythemia Vera (PV) and Essential Thrombocythemia (ET). We are always looking for updated information, and sometimes need support from others who are going through this, too. That's my reason for this. This site is still in its early stages. I have added links for you to gain information about this disease, and I'll try to give feedback only on what I already know from our own experiences and information from our doctors. If what we are going through can help others, too, then my goal for this site has been met.
Please feel free to contact me with any stories and information you want to share. I'll be glad to add them at your request. I also added a forum for sharing support, or just a shoulder. There are many of us going through MPD's, but there are a lof of people who have never heard of it. I'd like to change that.
Poem for Summer
Laughter of Lilacs
Rainbows of roses
Songs of the robins
Lily of the valley borders
Sunshine to warm the heart
Oh what joy this season does impart!
by Anne Morrow Lindberg
DISCLAIMER
Most of the things I mention about Myeloproliferative Disease, and any other medical stuff is only what I have read and researched on my own, and with conversations with our doctors. In no way am I giving advice or promoting any site in particular. This is only things we are going through now as a family, and this site has no other purpose.