Katie's Miracle

Blog

Week 3!I am writing this post on my BRAND new MACBOOK ;) thanks to my angel aunt and cousin Jason! Yesterday, Mom was a little late coming up to the hospital and when she got here, she was caring a large UPS package. I didn't think anything of it until I saw "Apple"....I almost had a heart attack!!! It is soo pretty ;) Thank you Nana and Jason for a BEAUTIFUL birthday present!!!!
We have been keeping updated on Alexandria and the flood mess. I know how miserable it must be not to have power and water everywhere! I am praying for you all...your welcome to come escape to Dallas! I have a comfortable hospital cot waiting on ya! ;) My best friend Morgan is coming today to cheer me up! I can't wait. She brings me a little sunshine to my gloomy life!
Week 3 in the hospital- My score is 64 which is the highest its ever been. The doctors say it can be anyday. They are looking at the list and monitoring for the perfect pair. I cannot go back to the apartment because my oxygen needs are so high. SOO I am just camping out until my call. Dr. Rosenblatt told me to try to keep my muscle strength up because I cannot really walk anymore. So I am trying to ride a stationary bike and do a little leg lifts. Its getting better everyday. The more strength I have, the better the surgery will go. Lets keep praying a quick phone call!
I want to thank everyone for their comments and sweet messages. Its what I look forward to everyday! I miss everyone from home but I believe its not going to be too much longer. In Jesus Name.
Love-Katie
P.S. I love you NanaJeremiah 29:11I have been living on this verse for the last 15 days. For the past two weeks, I have been fighting a hard battle. Two fridays ago, Mom had to call the ambulance to come get me. My SATS dropped to the 70s and my heart rate was in the 180s. The paramedics got me stable in the ambulance and brought me to the hospital. They put me ICU and started high dose steriods and BIPAP. Since then, they have tweaked my BiPAP settings (kinda like a mini-ventilator) and played with my steriod doses. I haven't really made any progress until today. Now the goal is to wean me down off the BiPAP and lower the high flow oxgen so I can go back to the apartment. They did a heart cath on my..which raised my score sky high! Now I am just waiting. I am BELIEVING JEREMIAH 29:11...I know God has a plan for my future. I am needing a miracle soon. Please keep praying and believing with me. In Jesus Name...Katie BlessedI am blessed! I am blessed with an AMAZING Mom and Dad, brother, sister-in-law, nieces, nephew, BEST friends, church, doctors, etc. But most of all, I am blessed with an AMAZING GOD! I don't know how I could take all the stress and pressure of CF and transplant without knowing and believing Jeremiah 29:11. I know God has a plan for me--a plan to PROSPER. I keep hoping in the Lord because I know He is the only answer to my situation. People ask me all the time "How do you do it Katie?" To answer their question...its hard. I am not going to sit here and tell you that its easy. It's scary not knowing how much longer your body can hold out. Its hard not knowing when that call is going to come. I just have to believe that I am not waiting for nothing. God has those perfect lungs for me. He is just waiting to call that special person home. Dad and Hayden left this morning for Louisiana. Hayden had an awesome summer with us. I can't believe how much he is growing up. We really got close this summer and I am thankful we got to spend so much time together! He starts school Monday, but he will be back soon. He told me he wanted me to call him when I got my new lungs ;) I am hoping maybe an oppurtunity will come up this weekend. Morgan, Mrs. Lisa, and Nat are coming tomorrow for the weekend. Morgan is like a big dose of depression medicine. She always brings a smile to my face! I wouldn't want to share my call with anyone else but her! ;) Keep praying hard. Its been 9 months...I pray that I won't make 10 ;(I love reading everyone's comments...they make me smile!Love you all!Katie