Montana's Hope

Educating Families on Neuroblastoma

December 1, 2009

Sorry for the long delay between posts.  Montana had scans on November 12, 2009 and they were clean!!!!!!!!!  God is Good.  Our next round of scans which will include the normal CT Scans and also a Bone Scan will be May 13, 2010.  He is such a normal little boy that it is hard to believe that he has fought so hard over the years just to survive.  It amazes us.  He amazes us.  I am so proud of him.  He is doing real well in Pre-K and is learning how to trace his name and he can identify the letters in his name.  He is just progressing leaps and bounds.  The only real outward sign of his cancer is his teeth.  In the cancer world, we call them chemo teeth.  His teeth are deteriorating so fast that we will probably have to intervene before he would naturally loose his teeth.  That's okay, if that's all we deal with at this point, I am good!  We love him so much and would do anything for him.  He is such a sweet little boy.  I will try to update more often.  Love everyone for their prayers and keep them coming to keep him in remission.  Love Mike and Nancy. 

August 28, 2009

Happy Birthday Montana!!!!  Montana is 4 years old day and is in Pre-K.  He really enjoys school.  He is going to school to get his driver's license, well he thinks anyway.  Almost every night he tells me that he didn't get them today, but tomorrow when he goes back to school he will.  He is a joy to have and we are very proud to be his parents.  He is all boy; loves to fish, be on the river, get dirty, ride the four wheeler which he is getting his own four wheeler tomorrow for his birthday.  As this day is here, I must reflect on the past 4 years of being Montana's mom.  All that he has been through and that we as a family have indured is amazing.  I look back on all of the treatment, chemo, radiation, surgery, etc. and I just can't believe that this day is here.  He is such a fighter and a trooper.  For a 7 month old baby to have to go through what he did, is just short of miracle.  Without God, I just don't know how any of us could have survived.  It was so hard to see your baby going through the pain that treatment was.  I love him so much I can't begin to express how much he means to both Mike and I. 

05/14/09

Okay, here is the news - we have clean scans!!!!!!!!!  Montana is 42 lbs and about 42 inces tall.  He didn't cooperate with the hearing tests, so those are inclusive at this point and will try again at a later date.  Eye test was fine, even though he didn't want to cooperate with them either.  Then they dilated his eyes which burns, so that was enough.  He told me "no more Mom" "take me home".  So we were done.  We will have scans again in November along with lung function test and echo.  I will keep you updated.  He is a growing boy and is all boy.  Anyone that has met Montana knows when I say he is all boy, he is all boy!  Thank you for the support and prayers.

03/19/09

Just an update to let everyone know that Montana's scan are May 12, 2009.  He will also have to have hearing and eye exams that same day.  Needless to say it will be a long day, but it is all worth it.  Pray for clean scans!  Montana is growing like a weed and loves to play outside on his Gator.  He drives that thing around the yard for hours at a time.  He also loves his swing set he got last year for his Birthday.  I cannot believe that he will be 4 in August!  Amazing!  God is good!  We are very proud to be Montana's parents.  He has such an imagination too.  He goes behind the yard barn building in the back yard and buys Mommie chicken nuggets through the imagiatary McDonalds.  Ha - Ha.  Until next time, we appreciate all of the continued prayers.  Love the Fishers.

12/31/08

Hello to everyone.  Montana is an amazing child.  His scans in November were perfect.  We are now on a 6 month scan schedule which for mom is very hard to handle!  I am grateful we can go to 6 months, but it is very scary for me~  Anyway, Christmas was a blast since he is at the age that he literally rips the presents open and is so very excited.  He is 40 lbs and 40 inches tall.  He is wearing size 5/6 toddler shirts and 4 toddler pants.  His shoe size is 11~  He has big feet like his parents.  Looking back over the last 3 years, I have to say just how much we are blessed to be Montana's parents and so very grateful and blessed that he is in remission.  He had a very tough battle which he fought with such strength.   Unfortunately his Aunt Cheryl passed away from cancer on December 20, 2008 at the age of 52.  Aunt Cheryl and Montana had a special bond and he was with her when she passed.  Although he didn't understand what exactly was going on and he thought she was sleeping, he was there. 

To that end, I thank you very much for the support over the last couple of years and we really appreicate the prayers you all have said on our behalf.  Please continue to pray for Montana and by the grace of God he will remain in remission forever!!!!!!!  His next scans are in May of 2009 and will include hearing and eye check ups.  Happy New Year

08/28/08

Happy Birthday Montana!  Montana is 3 years old today.  This is his second birthday in remission!  

Progress Page Information

Montana's progress information can be found on the home page right after any new updated information is obtained.  Mike and Nancy will be posting in their own words the information from Riley Hospital, Montana's Doctors & Nurses (extended family) which is relayed on the site.  Once the information is three-four weeks old the information they have posted will then be moved to the progress page.  This is the historical page that all updates are kept on.  If you would like to review this information is left for that purpose.  Montana's Hope will also be completing a log book for Mike & Nancy that they will be given to keep.  This will include all the website pages, guest book postings, photo's, etc.  If you have specific questions regarding Montana's progress please email us at montnashope@hotmail.com and as always, thank you for taking the time to visit, thank you for your prayers and support.  Please continue to pray as Montana is a miracle!  

Montana's Hope

Montana's Hope Link:  http://www.freewebs.com/montanshope

7/25/2008

Scans are clean!  Praise God!  He was such a trooper.  Montana weighs about the same 39-40 lbs and is about 40 inches tall.  We are now potty trained too~  The only test results we are waiting to get back is a urine test.  There is a urine test that has to be sent off and it takes about a week to get the results back.  This test shows pre mature neuroblastoma cells before it forms any tumors.  Pretty remarkable if you ask me.  We should have them back this week sometime.  I will keep you posted.  Lots of love....

July 2, 2008

Montana and family are preparing for his upcoming scans at Riley Hospital on July 24, 2008.  Please visit our new page titled calendar for additional information.  As always please pray for safe travels and CLEAN SCANS!

6/20/2008

The next round of scan are scheduled for July 24, 2008 which will include an echo cardiogram, ekg and regular scans of the orbits (head), pelvic and belly.  Keep the prayers coming!  He is an amazing little boy!  We are almost potty trained.  He is doing pretty good.  He eats good, plays hard and is a joy.  We are proud to be his parents! 

Please check out our new link "CALENDAR" for upcoming scans, etc.

04/29/08

SCANS ARE CLEAN!  Yeah!  We will go back in July and have an echo done of his heart and ct scans.  He is 39 1/2 inches tall and 39 1/2 pounds!  Weird huh?  He wears a size 11 shoe, 5t - 6t shirt and a 4t pants.  He is a handful.  He loves to be outside and doing something.  He helped daddy till the garden Sunday and helped mom mow the grass until we broke the belt.  He loves to smell flowers, specifically my lialics, but also to run them over with the mower, easter flowers.  He rides his "gator" all over the yard and he really steers very well around objects.  All for now, he is wonderful.  Continue to pray for us and others.  The Fishers.

04/10/08

Montana's scans are set for April 24, 2008.  We will go up the night before and then go to Riley's Hospital in the morning.  It seems to work out better when we go up the night before and then he gets a good nights sleep before all of the activities of the day.  I will keep everyone posted.

03/27/08

Just an update, Montana is doing well and enjoying the few days of good weather.  He loves to be outside!  Imagine that!  He is getting real excited about being able to be outdoors more often.  Mushroom hunting is coming up and I am sure he will have a blast!  Daddy was cleaning off the garden this week and he was trying very hard to help us out.  He is such a little man.  He is amazing and we are blessed to have him in our lives.  I cannot imagine life without him.  He has such a personality.  He continues to grow like a weed.  I just bought him new shoes and they were size 11!  For 2 1/2 I think that's pretty big!  Thanks again to all that have prayed for Montana and our family and for everyone that continues to pray.  It is never over and all prayers are needed and welcomed.  God bless. 

02/04/08

Finally able to update everyone on Montana's scans which were Thursday, January 31, 2008.  The scans were perfect.  We couldn't have asked for better scans.  Dr. Fallon was totally impressed.  We also received additional good news.  After his radiation, surgery, chemo and the whole nine yards, it is a given that his left kidney would not work or if it did very little.  During the CT scan, they give Montana contrast to make everything show up better and apparently the left kidney "suck up" the contrast which means only one thing:  the kidney is working!  We don't know how much but it has to be working for it to draw the contrast through it.  Praise God!  He also passed his hearing test which is important because the chemo that he had is known for causing hearing loss and doing damage to the ears.  It was an amazing day.  A long day, but well worth it!  We go back in 3 months to do it again!  He weighed in at 42.9 lbs which is good since he has grown a lot taller and especially since he is off the bottle which now he won't even think of drinking any milk!  He is in a size 10 shoe, 4t pants and a 5 or 6t shirt.  He is growing so much and his vocabulary is expanding too!  Thank you everyone for your prayers and keep them coming!  Love always, Mike, Nancy and Montana

01/17/08

Well we finally got the call from Riley's and scans and audiogram is set for January 31, 2008.  They want to do another audiogram to make sure that he does not have any permenat damage to his hearing from the strong chemo that he received.  Overall Montana is progressing as a normal 2 year old would.  He is growing, playing, exploring and just being amazing.  He is so smart and "grown up" for his age.  The things he comes up with is amazining especially for all that he has been through!  He knows all of his colors, can count some, he knows all of his animals and knows that cows sleep in the barn.  Every time we pass a barn he is "mooing" in the back seat knowing that there just has to be cows in there!  He has such a great memory it is astonishing what he remembers, often times more than me!  I want to take this opportunity to thank everyone who has visited this site and gave us support and hope.  I pray and want everyone to keep us in your prayers for clean scans on the 31st.  Love .....

12/17/07

Thought I would update you on Montana.  He is growing like a weed and looking forward to Santa.  He has helped decorate the tree with all of the extra/old cell phone car charges and it looked wonderful until "mum" took them all down.  For some reason he calls mommy "mum".  Daddy is daddy, but mom is "mum".  I don't know where he got that from but that is what I am.  He is a blessing and each and every day I pray that he is healthy and will grow up as a normal little boy.  God sure has gave him the energy that is for sure!  Next scans are in January, I don't know the date yet, but I will update when I find out.  Love to all and hope you have a great Christmas and remember exactly what Christmas is.  Love  us.....

10/22/07

Hello all, we had scans on the 18 and the final results have came in.  They are clear!  Praise God!  The remains of the tumor on his head has almost completely healed over and we may not have to have scans on his head anymore just his belly, chest and pelvic.  He is doing well and weighs in at 42.9 lbs.  He is a brusier!  It is hard to imagine that he only weighed 19 lbs in December and we were struggling to get him to eat.  Now, he doesn't stop eating.  He is a wonderful little boy and I wish all the people who have prayed for him could actually meet him.  We will eventually get all of the pictures on line and update them but we have had little time to get it done.  Thanks to everyone who has visited his site.  You will never know how much it means to me that so many people care about our son.  Also, we go back to Riley's in January for his next set of scans and some specialized blood tests that will reveal how close to normal his immune system is.  Once they know then we will be able to start his shots again and get caught up.  Kisses and hugs to all.  Love the Fisher family.

09/21/07

Montana is scheduled for his next round of scans for October 18, 2007.  He is growing like a weed and we are working on potty training.  Somedays are good others are challenging!  He is very stubborn!  Ha-Ha.  He needs a haircut, but neither of us can cut it yet!  Will keep you all informed.  Love us.

08/28/07

Happy Birthday Montana!  Montana is 2 years old today at 8:28 a.m.  He is such a blessing and we are very proud to be Montana's parents.  We had his birthday party Sunday and we bought him his first bike!  It is a Tonka bike and he was so excited.  He was so excited that he wanted to put the bike in bed with him that night.  Dad drew the line and allowed him to have it at the end of the bed but not in bed~  He is a trip!  It is hard to believe that last year this time we just finished with 6 round of chemo.  He has been through a lot in is short life and I pray everyday that he never has to go through any of that again.  This is his first birthday in remission and I pray that all of his future birthdays are the same!  Love you Montana.

08/20/07

Montana has his 2nd birthday coming up on the 28th.  We are going to have a party on Sunday for him.  He is growing like a weed and he is talking more than ever.  This will be his first birthday in remission and it means a whole lot to Mom and Dad.  This is a very special birthday.  If everyone remembers, last year we only had a 30% chance he would live, now we are going to celebrate his 2nd birthday.  What an accomplishment for such a little guy!  He is growing up so fast right before our eyes.  Mom is having a hard time with that!  Will keep you updated. 

07/16/07

Scans were completed on Thursday, July 12, 2007, and they were all good!  Clean!  We are good for another 3 months and hopefully an uneventful time.   Montana weighs between 36 and 37 pounds and is growing like a weed.  I think he is going to be tall like his parents.  He loves to be outside and he has now experienced fishing.  He absolutely loved it!  That is all we have heard is "fish" "fish".  Dad bought him a cane pole and he is dangerous with it!  We all duck when he pulls it out of the water.  It is the funniest thing you have ever seen!  Will keep everyone updated.  Love us...

06/25/07

Montana attended the American Cancer Society Relay for Life of Posey County-North Posey and received the 2007 Jr. Courage Award.  It was a very excited day for him.  He walked the "survivor's lap" around the track several times, even though the was carried for parts of it.  1/4 mile is a bunch for a little guy like him.  He also received a purple survivor's shirt and a survivor's metal.  He had fun with his family and friends and as Montana's parents we thank everyone for their efforts.  No one will ever know unless you were there just what he went through and just how sick he was.  Between the chemo, radiation, transplant and just being sick from all of the side effects of the treatment, he has been to hell and back.  He truly deserved the courage award.  He is such a trooper just as I have said all through this.  He was so strong and brave.  Aunt Cheryl was even at the events.  I think Montana and Aunt Cheryl have a special bond together.  We will give an update after scans.  Love .....

06/18/07

Hello everyone!  We are scheduled to return to Riley's on July 11, 2007 and be there two days for MIBG scan and normal CT scans.  The MIBG is a very important scan.  This is the one that he will get an injection the day before with a chemical from NASA in California and it is designed to attach itself to any neuroblastoma cells.  Of course we are praying that there still isn't any in his body at all.  We have had two of these scans that have been "clean" so keep the prayers coming that this horrific disease stays away from him forever.  Love always.  

05/17/07

Yesterday we had an appt with Dr. Fallon and he indicated that we are in complete remission, done with all medicines and are scheduled to do scans every 3 months for the next 2 years.  He also indicated that we should try to live a “normal” life.  I asked him to define normal and he couldn’t.  The stress of not knowing if the cancer is coming back or something else is growing is enormous.  Every single day Mike and I think about whether something is coming back or something new is growing.  This will never be “over” but for now we are trying to enjoy everyday and spend more time at home since the Riley trips are reduced greatly.  Our next scans are going to be in July which will include regular cat scans and also the important MIBG scan which is the scan that use the injection from NASA which attaches itself to any neuroblastoma cells.  It is very important to see if there are any cells still in his body.  Our first MIBG scan lit up like a Christmas tree but the last two have been negative for any cells before and after transplant.  We have every reason to believe that this scan will also be negative.  We appreciate all prayers and support that family, friends and people we didn’t even know and pray that they keep coming.  We should be able to resume his baby shots by the end of the year.  Rule of thumb is a year after transplant which was in October.  This appt was a very positive report and we are grateful to God that we have been blessed with this little miracle.  Actually, he isn’t little anymore making up for lost time indeed.  He weighs in at 34.4 pounds and is over 33 inches tall.  Remember in December he only weighed 19 pounds.  I will continue to keep you updated on his progress.  He loves to be outside and loves to go for rides with Daddy on the 4 wheeler, lawn mower or just in the truck.  He is a handful and is a delight to be around.  His attitude is always smiling through even after going through everything he has.  This has been a very hard road and a road I hope to never travel again.  The emotional toll that it has taken on us is huge and will never be forgotten.  Love always…..

04/04/07

Went to Indy yesterday for Montana's 3 month scans and all was perfect.  The scans are clear.  He now weighs in at 31 1/2 pounds and is 32 1/2 inches tall!  He is going to be a big boy and is so different from when we were going through transplant and fighting to just maintain his weight.  A wonderful change!  We go back to see Dr. Fallon on May 3, 2007 and will update his progress then.  As of right now we are trying to live a normal life as a toddler.  He loves to be outside and gives Daddy a run for his money!  He is not scared of anything including Daddy!  Love always and keep the prayers coming.  The Fisher Family.

03/27/07

Just a quick update, Montana should be going up the end of this week or beginning of next for scans.  He got a 4 wheeler (battery powered) over the weekend and he absolutely loves it!  He is getting so big now.  He loves his baths and loves to be outside just like his Daddy.  We are all very blessed to have him here with us considering how much he has been through.  I hope no one ever forgets just what he has been through.  We love him with all of our hearts!   Mike & Nancy

03/02/07

Children with cancer are like candles who accept the possibility that they are always in danger of being extinguished by a gust of wind from nowhere; and yet, as they flicker and dance to remain alive, their brilliance challenges the darkness and dazzle those of us who watch their light.

02/20/07

Montana had a good time last night with his bath.  This is the first bath that he actually sat down in.  He had a ball.  He splashed water every where but I didn't care.  I was soaked by the time it was over!  I even washed his hair, yes he has enough to wash now, and poured water with a cup over his head and he didn't even mind.  He was too busy splashing around in the water!   God Bless you all. 

02/06/07

Montana spiked a fever Friday, February 2, and we were once again on our way to Riley's.  Was seen in ER and received antibiotics and blood work was done.  Arrived home about 2 a.m. and was wakened by the phone at about 8:30 from Riley's and was told he had a positive culture and to get back right away.  Arrived back in ER and was admitted after doing more blood work and antibiotics.  It was determined that his line was infected and it was removed Sunday afternoon.  We stayed on antibiotics until Monday morning and was discharged.  Now he is doing well and we can have a bath in a few days!  No more line, no more dressing changes which he hated and no more being careful of his line.  It's great!  We are scheduled to be back in Indy for scans mid March.  Love all....

01/23/07

Hello to everyone~~Montana is doing well.  We are scheduled for surgery Feb 8 to remove his line.  Finally, Montana Man will get a bath.  Will keep everyone posted on his progress.

01/05/07

Yesterday was a big day; we had ct scans, hearing tests, echo and ekg.  All were normal!  No sign of any returning cancer.  Go back in 5 weeks and they will schedule to remove his line.  Will have scans again the end of March or beginning of April. 

12/27/06

Montana is doing well, actually getting some hair, eye lashes and eye brows!!!!  We are scheduled to go up for ct scans, blood work, ekg & echo and a hearing test for post transplant.  His central line is clotted off on one side so we may have to have surgery to remove the line.  They may try to dissolve the clot, but since we are at the end of treatment we may be able to get rid of it.  It will just depend on how many blood draws he will have to have.  If its still going to be a lot, then we will unclot it, if not many once a month or so, then we may remove it.  We are a little nervous about scans but are hopefully nothing is growing back.  We will have to have scans every 3 months for the first year.  Keep him in your prayers and we will overcome this too!  Thank you to everyone for everything.  Mike, Nancy & Montana.

12/04/06

Finally, we are all home again.  Montana is done with his radiation and growing like a weed.  He did very well.  We were in the hospital and isolation for 64 days.  We are glad to be home.  God has blessed us with a wonderful son and we are very grateful to everyone for their prayers and concern.  He is doing well and hopefully we can try to get back to normal for a while.  Love Mike, Nancy and Montana.

11-07-06

We were released from Riley's on 10/24 to the Ronald McDonald House.  He is doing well recovering everyday.  Radiation starts on 11/13 for 12 rounds so we should be able to come home on or around 11/29 the last day of radiation.  It has been a long haul (over 2 months up here in Indy) but we are making it.  Thanks to all for your continued support.  A special thanks to Aunt Nee Nee for her trips up.  Everyone's thoughts and prayers are greatly appreciated. 

10/10/06

Montana has a line infection therefore he goes into surgery this morning to remove his central line.  Once the infection is clear they will go back to surgery and install a new central line.  This is not ideal, but we have to deal with it.  Will keep you posted. 

10/04/06

All is going well so far. Chemo is over and now is well needed rest.  He is holding his own and doing better than the doctor's expected.  He is so strong and such a little trooper.  Thank you for your prayers and thoughts.  Love Mike & Nancy

09/25/06

We are scheduled to return to Indy Thursday, September 28, 2006 (his 13 month birthday) for a final exam and to sign consent forms for the transplant.  Friday, September 29, 2006, chemo begins (4 days; 24 hours a day).  This is the long haul with expected stay being 30-45 days. 

09/22/06

Got back last night from a long 3 days of testing.  All of the tests came back wonderful and normal.  The MIBG scan which is what we really were watching was negative for any neuroblastoma cells in his whole body!!!!!!  Nothing showed up.  We are absolutely beside our selves and are thanking God for such wonderful news.  Stem Cell Transplant is set to begin next Friday the 29th.  We have to be there on the 28th for a final exam and to sign consent forms.  This transplant is very important.  This will wipe his slate clean and give him a fresh start with all clean cells and bone marrow.  It will be hard on him and all of us but the end result and the big picture is what we have to look at.  Keep the prayers coming and I thank God everyday for being given the opportunity to be Montana's mother and his continued recovery.  Love Mike & Nancy.

09/13/06

Stem cell testing is scheduled for September 19-21 which will consist of ekg, echo, kidney function, MIPG scan, ct scan, bone scan, bone marrow aspiration, hearing test and dental exam on top of extensive blood work.  He is in for three full days of testing.  He will have to be sedated at least twice.  Tentatively we will be back up there on the 28th for a final examination and admitted on the 29th for the start of the chemo that will kill everything (bone marrow, white blood cells, etc).  The infusion day for his cells is the 6th of October (4 days of chemo then 3 days of rest).  This is tentative because if it takes longer to get the results back on the blood work we may be pushed a week later.  Montana is strong and growing and we are praying for a speedy recovery from this very hard round.  Maybe at least there is a light at the end of the tunnel.  Love Mike & Nancy
/13/

9/08/06

Had fever Tuesday and had to make a trip to Riley's, but was discharged and home now.  He seems to be doing well.  Will have to go back one day next week for platelets since they are still really low.  All seems to be on schedule.  Stem cell testing will begin probably the 18 of this month and then about a week later we will be admitted for the long haul (30-45 days) in isolation.  The big test right now is the MIPG scan.  If it is negative for neuroblastoma cells then he will only have to have radiation on his belly and not his head.  That is a real big deal since the complication with radiation on his head is not something we want to deal with.  They can be severe.  We pray that radiation is limited to his belly only.  Will keep everyone updated as we know what is going on.  Thanks for all of the prayers and keep them coming.  God is in control and we have great faith that He will take care of us.  Mike & Nancy.

8/30/06

Well, we had 6th round of chemo 8/24-8/27.  We made it home for Montana's first birthday [8/28].  He did very well considering the chemo he just received.  Mouth sores/fever should be this coming weekend which Riley's totally expects.  Hopefully not, but normal if they come.  Next bout is testing to prepare for stem cell transplant.  Once that is complete we will be headed for 30-45 days of isolation.  After isolation is radiation.  We will keep you posted.  Mike & Nancy

8/18/06

08/15/06

We got home Monday night about 7:30 or so and Montana is doing wonderful!  You can't even tell he has had a major surgery.  We just received a phone call from Riley's Hospital and the pathology report on the tumor is in:  THE TUMOR WAS TOTALLY DEAD!!  Unbelieveable!  Now that the report is in everyone can breath a sigh of relief.  Although this report was excellant, it doesn't change the plan.  We still have a lot in front of us.  Chemo in about 2-3 weeks, scans, stem cell transplant and radiation.  If all goes well with the scans, radiation may only be on the kidney and not the head which is what we want.  The side effects of radiation on the head is quite severe so if we can avoid the potential complications of that it would be excellant.  We all know that he is a strong little boy and is a figher.  We appreciate all of your prayers and thoughts.  Mike & Nancy

08/15/06

We got home Monday night about 7:30 or so and Montana is doing wonderful!  You can't even tell he has had a major surgery.  We just received a phone call from Riley's Hospital and the pathology report on the tumor is in:  THE TUMOR WAS TOTALLY DEAD!!  Unbelieveable!  Now that the report is in everyone can breath a sigh of relief.  Although this report was excellant, it doesn't change the plan.  We still have a lot in front of us.  Chemo in about 2-3 weeks, scans, stem cell transplant and radiation.  If all goes well with the scans, radiation may only be on the kidney and not the head which is what we want.  The side effects of radiation on the head is quite severe so if we can avoid the potential complications of that it would be excellant.  We all know that he is a strong little boy and is a figher.  We appreciate all of your prayers and thoughts.  Mike & Nancy

08/14/06

Montana is doing well this morning.  He is unhooked from everything including the pain pump.  He is now taking his pain meds orally.  He is eating well and walking the halls.  He looks so great.  His color and disposition is remarkable.  Unbelievable that just a few days ago he couldn't even move but now you can't even tell he has had the surgery!  We love him so so so much and are so very proud of him.  He has done so well.  Kisses from Mom & Dad

Surgery Updates

  • 8/12/2006 Montana is in a lot of pain. Still in the recovery process.  We will keep you posted as often as possible. With Love Mike, Nancy, & Montana

 

  • 8/11/2006 @ 445PM    Montana made it out of surgery.  They did replace the central line and also REMOVED ALL OF HIS TUMOR!!! We will try to keep you all posted as much as possible.  Please know that we appreciate all the thoughts and prayers.  Keep them coming!!

        Love    Mike, Nancy & Montana

08/09/06

Surgery is Friday, August 11, 2006, at 1:00 EST.

08/02/06

Still waiting on a call to say when the surgery is.  I have been told that it will be next week, but not sure which day yet.  Stem cell transplant team is already waiting to start their part of his treatment.  After surgery is 6th round of chemo then scans then stem cell transplant.  I will keep everyone updated as I can.  Should know by Friday about the surgery.  Love Mike & Nancy

P.S.

Also, I wanted to let everyone know how much we appreciate your thoughts and prayers.  They are ALL welcome and appreciated.  Also, we have a lot to be thankful for.  Although our situation is not the best with the cancer and all, we are blessed to be Montana's parents, that the tumor is responding well, that Montana is such a trooper, that the secondary tumors were behind his eyes verses somewhere where we wouldn't be able to see and get treatment, that its not in the dead of winter and fighting the snow to get to treatment, that our doctors are wonderful, and so so so much more.  Just wanted to say that. Nancy

7/28/06

We don't have the final results back from the CT scans that were done yesterday, but the doctor said that the tumor has shrunk even more, maybe in the range of 70-80% which is remarkable.  Should find out today about the tumors behind his eyes this afternoon.  Surgery will be within the next 7-10 day, mabe even as early as Wednesday.  The doctors were very impressed with his growth.  Normally on the type of chemo he is on kids don't grow and need supplemental nutrition.  Not Montana, he weighs in at a little over 20lbs and has grown to 29 1/2 inches long!  Will update when we hear from the doctor about the exact numbers and the date for surgery!  Love Mike & Nancy

7/26/06

Well, heading back to Indy for scans tomorrow.  We should know the results of the scans by late afternoon and hopefully be able to speak to the surgeon [it's the same doctor that put his central line in and did the biopsy] and get a game plan.  I expect the surgery to be sooner rather than later.  I do hope we have a week or so to prepare and spend some time with Montana before the big day.  Hopefully coop time won't be too bad.  We all know that he is a trooper, but this surgery will be a hard one and a very important chapter in his fight against the cancer.  Obviously we would like for them to be able to remove the entire tumor and have no residual tumor left, that would be ideal.  However, there is a chance they can't get it all which may dictate more chemo or a change in the treatment plan.  We need all the prayers we can get right now and hope for total removal of the tumor.  We are nervous, scared and excited all at the same time.  We want the tumor out of his body, but the avenue in which it will be removed is a hard one.  Will update once we have the results back on the scans.  Love Mike & Nancy

07/19/06

Montana is doing well this week.  Cutting teeth like crazy.  He has 4 on bottom 1 in on top and a second one on top breaking through as we speak!  He is such a trooper.  He seems to be doing well.  This is the first time that after a chemo treatment we were not back in Indy with fever and/or mouth sores.  We feel "out of place" since we were home over the weekend.  The doctors said he could still "bottom out" on his counts but each day its less likely.  CT scan are scheduled for July 27.  From there we talk to the surgeon and get surgery scheduled.  Will keep everyone up dated and I have new pictures that I have to get on the site.  There is one particular picture I want everyone to see and that is the IV pole with the chemo be administered.  He is such a trooper and hopefully we can keep him strong before surgery.  Love Mike & Nancy

07/12/06

Finally got home a day or so ago and trying to get things caught up.  Before we left the hospital Montana's counts were already dropping.  The doctor explained it that it is like a boxer, the 1st round he gets up quick, but after the 5th round it takes more time.  His bone marrow is tired now and therefore his counts will drop quicker and our chance for fever and/or mouth sores are increased and should happen before the weekend instead of the normal 7-10 days after chemo.  I hate the waiting game.  I can tell he is not feeling well today, but so far no fever or sores.  We will wait and see.  Trying to get his CT scans scheduled then appointment with the surgeon.  Will know more about surgery after that.  Love Mike & Nancy

07/08/06

Chemo started Thursday night which he got sick through the night but was better last night.  Doing fine and eating  blueberry muffins as we speak!  Montana gained a pound and Dr. Fallon was very happy.  Normally on this protocol it is unheard of gaining weight.  Usually its barely maintaining.  Should be coming back in 3 weeks for scans and to meet with the surgeon.  Then will schedule surgery.  I am sure we will be back next weekend for either fever or sores.  Will keep you updated.  Love Mike & Nancy

07/05/06

Montana's first 4th of July was wonderful.  He had a great time and the fireworks didn't bother him a bit.  He watched them for a little bit then fell asleep and slept through the rest.  He was great.  Had a great weekend too.  His counts are good and he was a delight.  Leaving tomorrow for Indy for 5th round of chemo.  Should find out when the surgery is hopefully in the next couple of days.  Will keep you updated.  Love Mike & Nancy

06/30/06

Well finally home.  We arrived home last night from Riley's and are heading back July 6 for 5th round of chemo.  He is doing better, but those mouth sores are something else.  It is the worst side effect of the chemo for him.  They are very painful and nothing helps but narcotics and a lot of love.  You can't eat with the sores since it hurts to swallow or even close his mouth.  His poor little tongue was sticking out for days.  On the up swing now though, hopefully anyway.  If his counts rebound good this weekend chemo is on schedule for the 6th.  Mike & Nancy

06/26/06

Got to Riley's Saturday afternoon.  Montana has mouth sores and is in a lot of pain.  Counts should be on there way up by tomorrow hopefully.  He is holding his own, but is real uncomfortable.  On narcodics to ease the pain and wants to eat, but can't swallow.  Will keep you updated when we can.  Love Mike & Nancy

Update 06/20/06

All went well for fourth round of chemo.  He is doing great.  This weekend we will be looking for fever or mouth sores.  He is in good spirits and is eating for now so that is all we can hope for.  Surgery should be in about 6 weeks.  Will keep everyone updated.  Mike & Nancy

Update 06/14/06

Counts are back and we are good to go for fourth round of chemo tomorrow the 15th.  We should be there about 4 days or so.  You never know!  Again, thanks to everyone who signs the guest book and the continued prayers and thoughts.  Mike & Nancy

Update 06/09/06

Just received blood counts and he has "bottomed out" so we will be looking for fever this weekend.  If one develops, we will be back on the road.  If not, we are scheduled for 4th round of chemo on June 15, 2006.  Will keep you posted.  Nancy

Update 06/08/06

Hello to everyone, we are finally home!  We came home on two antibiotics but so far no more fever.  It was  scary ordeal.  We actually had to detour to Evansville for a quick round of antibiotics before we could get to Indy.  His fever spiked at 104.  We handled it fine and all is well for now.  We are due back in Indy on 6/15 for 4th round of chemo.  I will try to update the site as often as I can, unfortunately Crystal is unable to update for me anymore, so I will try to keep up.  Mike & Nancy

6/3/06 Saturday 300AM CST Montana is headed back to Riley

Friday evening Montana was doing great and the family was planning a weekend at home.  Around 945pm Montana took a turn for the worst and started running a fever.  The family loaded the car and was headed to Riley when his temp spiked to 104. degrees. While Nancy was on the phone with Riley Hospital making plans to head up, they made the decision to turn the car around and head back to Evansville.  Mom & Grandma were trying everything to keep his fever from climbing any higher in the car and they did finally reach Deaconess at around 1200pm CST.  Once the labs were drawn they found out that his counts had fell from 3800 which was taken Thursday to 0.4 at 1:00am on Saturday morning.  Riley instructed Deaconess to give Montana a round of Antibiotics so that he could withstand the trip, antibiotics were given  (temp at departure was 99.8)and they hit the road at approximately 2:15 AM CST Saturday morning.  They should be reaching Indy at around 600 AM CST or 700AM EST (which is the time Riley is on).  We are asking that everyone pray we are hoping that this is just a little set back from the four days of Chemo that he just received.  I am planning on updating as soon as we receive more information.  ~Crystal

6-3-06 Saturday 12PM CST

Montana has no fever at this point.  The family is still waiting in the ER for a room on HEMOC (5th floor)  Riley is packed.  Everyone is very tired but did want to keep all of the family updated.  Montana is doing fine at this point and acting like his normal self.  ~C

Wednesday May 31, 2006 10AM CST

Mom just received the call from Riley and the Bone Marrow is NEGATIVE!!!!!!!!!!!   Montana is still doing great and this is an answer to prayer. 

Monday May 29, 2006@ 530CST

Home just in time for Memorial Day!  Great news the tumor has shrunk 50%! Thank GOD!  Working on getting all the new pictures from the last week posted.  Sorry for the delay in the updates.  Montana is doing great!  Pictures should be done later today or tomorrow.  Thanks for visiting! ~Crystal

Thursday May 25, 2006 @ 6:00pm CST

Mom is reporting that aill if going as planned. GUESS WHAT!  The tumor on his kidney is half the size if was!!!!!!!!!!!!!!!!!!! Thank you GOD! Mom did say that they will not know the results to the Bone Marrow until tomorrow.  Chemo has not started yet but I will be sure to update as they come along!

 

Wednesday 24, 2006 @ 3:00pm CST

On the road to Riley today.  After a good nights rest they will be at the hospital tomorrow.  CT will be done, etc.  We will update as soon as we receive an info on the status of Montana.  Please pray for the family and Montana for a great day tomorrow.  Please pray that the tumor is gone!

Sunday May 21, 2006

Ok, If you have not done so swing over and check out the photo's on the #2 album.  Montana spent the weekend hanging out at home.  Montana had some visitors stop by, he did try out eating a few black eyed peas.  Take a minute and check out the short video clip of Montana and Grandma laughing it up.  It was so good to see him smile, and smile he does. He is such a ham.  Family will be taking off Wednesday back on the road to Riley.  I will try to get the picture of his Biscuit Wagon on soon.  The Biscuit Wagon is all in thanks to Grandma and Grandpa and it is so cool.  This week coming up will mean another CT scan and we are all praying that the tumor is gone. (Fingers Crossed and Praying)also Bone Marrow and you guessed it CHEMO  but we all know that he is on tough cookie.  So let's all pray for a safe trip to the hospital and back, and also a double hard prayer for Montana who will beat this.  Keep the faith! ~Crystal

Wednesday 17, 2006 Coming Home!

Finally they are on the road home.  It is 3:30 now so they still have a little drive.  They were able to go in and pull twice on the stem cells!!  Now they have more than enough!!  Looks like it was worth the stay and now that they completed that mission they are on the road home.  They are planning the next trip of course which will be next Wednesday-CT, Thursday-Bone Marrow, and Friday starts the new round of Chemo.  More updates as they come in. 

Monday May 15, 2006 @ 1:30pm CST

Well no luck!  After the labs were pulled today Montana's counts needed to be at 10,000 before they could pull stem cells.  Labs came back today and they were a little over 6,000 so they have tripled the dosage of the GCFS (this causes allot of pain for Montana) and they are going to try and go in again tomorrow and see if they raised the levels up to 10,000.  So, little man is hanging in the game.  He is still very ill, and in allot of pain so let’s kick those prayers into overdrive and get this family home!  Mom wanted to send a message to everyone.  When I spoke with her yesterday she said to tell everyone thank you for everything.  She also wants everyone to know that she enjoyed Mother's Day and even though she spent her first one in the hospital with her little angel she was still so happy to be with him on Mother's Day.  Thank you to all who left messages for Nancy for Mother's Day.  As always love and prayers to Mom and Dad and lots of kisses for my Montana Man XOXO I wish I could take all of this away.  Family is hoping that if they can get a pull tomorrow they will be on the way home late Wednesday or possibly Thursday.  I will keep the site updated as much as possible.  Keep the faith ~Crystal

Sunday May 14, 2006 @ 3:45PM Happy Mother's Day!

Montana is doing alright today.  Spending all of his time with his Mommy today.  Still getting his meds like clock work.  Family says hi to all and thank you for the posts and messages they are truly appreciated!  Stem Cell therapy should start early in the morning.  We will be keeping the site updated through out the day so that you know how he is progressing.  Happy Mother's Day to Nancy. If you have not had time please stop by and check out all the wonderful message's that have been left for her.  ~Crystal

UPDATE! Friday May 12, 2006 @ 8:00pm

Well little mister Montana will be staying the weekend at Riley.  The Doctor spoke with the Family and they may possibly be released tomorrow but will stay in Indianapolis since he is still receiving IV antibiotics, etc.  Then come Monday morning bright and early they will start with the stem cell harvest.  More updates as they come in.  Best wishes to Montana!  We Love You and Pray for you each day.   Kisses~Crystal

UPDATE Friday May 12, 2006 @ 9:30am

Mike & Nancy are hopeful that they will be discharged later on today or possibly Saturday.  But the trip home will not last long as they are scheduled to be back at Riley on Monday morning at 8:30am.  Montana's counts are just right for stem cell harvest so this will be done on Monday and the stay could be any where from 2-4 days long. Stem cells will be harvested from Montana since they are good and then frozen for later use.  Lets all pray for 2 because they are scheduled for Chemo at Riley on the 25th of this month.  Mom & Dad are still wanting to let everyone know that they appreciate all of the thoughts, prayers, guest book entries, please keep them coming as they truly need them right now.  The web site will be updated later this afternoon to let everyone know if they are coming home tonight or on Saturday. 

Wednesday May 10, 2006

Montana is still on the road to recovery.  He is doing better and better each day.  They are hoping that they can come home on Friday.  The next round of Chemo is set for the 25th of May. 

Tuesday May 10, 2006 @7:00PM CST

Montana is doing a little better today.  They are still giving his IV antibiotics and fluids.  He is still not eating due to the ulcers that he has in his mouth.  Once his counts come back up they are hoping that the ulcers will go away.   Hopefully they will be able to come home in a couple of days.  The next round of Chemo will be started on the 25th of May.  They will also be doing a Bone Marrow and CAT Scan at this time as well.   Mom & Dad are so thankful for all the thoughts, prayers, etc.  and want to say Thank You to everyone!  Sorry for some of the post's that were lost and we did loose a few pages over the past couple of day's and will try to get those back on as soon as possible.  ~Crystal

Monday May 8, 2006 @ 10:00am

Montana had a rough night.  They have restructured the morphine intake and are still trying to get his counts up.  Hopefully they will make a turn around soon.  Nancy still sounds very tired.  Please keep praying for the family they are needing it right now more than ever.

 

Sunday May 7, 2006 @ 7:00pm

Montana is very very sick.  Nancy has stated that they have once again increased his morphine.  She is saying that this is as sick as he has ever been.  He has no white blood cells today and his hemoglobin has dropped to 7.  He is in allot of pain from having the ulcers in his mouth and throat possibly down his esophagus.   He will not swallow so he is just letting all the saliva run out of his mouth.  I of course have asked her if they need anything at all and her reply was that they are needing allot of prayers.  Nancy sounds exhausted.  Please continue to pray for Montana and his family as he struggles with this round at Riley.  At this time they are giving him fluids through his IV because of him not wanting to swallow.  And even with the increase in morphine Nancy says that he is still so uncomfortable.  They are anticipating that this may last for 72 hours until his body gets through the shock of this past set of strong chemo and tries to recover to a normal and stable point. 

SATURDAY MAY 6, 2006 @ 10:00 am.

Montana is back on the road to Riley this morning.  It seems that he did not sleep well last night and he cannot keep anything down.  This is probably the precursor to the fever that they were planning for.  Yesterday Montana's white count was 400 when it should be at 10,000.00. They cannot give him Tylenol for the GCFS injections that he is getting because it will mask the possible fever that they have been waiting for.  When they did call Riley this morning Nancy was allowed to go ahead and give him a little since it seemed that he was uncomfortable.  So they have to pack up and hit the road head to Riley and go straight in.  More updates as they come in. 

Friday May 5, 2006 @ 2:00pm CST

Sorry for the delay in the updates!  Mom (Nancy) was waiting for the result's of Montana's blood work. Montana's white cells are extremely low but hemoglobin was 9.5 so that's better.   The nurse said be very cautious because he doesn't have any thing to fight anything with!  They are 95% certain that he will be getting a fever.  Mom & Dad are watching him closely now and will continue to do so over the weekend.  If the fever happens then the family will have to receive antibiotic's here in Evansville and then return immediately to Riley for Stem Cell therapy.  Then following this they will receive the chemo.  Mom shared the newest set of pictures that were taken on the last visit to Riley the weekend of April 30th.  You can view the photo's by checking out the photo gallery #2 on the menu.  Thank you to all who have visited.  I hope that you all will keep coming back for updates, pictures, and posting your comments and feedback.  They are greatly appreciated!  Crystal

Monday May 2, 2006 @ 7:00am

"Montana is doing well today, learning new sounds everyday.  We would like to thank everyone who has left messages in the guest book.  It really makes me feel good to know that so many people care about Montana's progress.  He is a special little man and he continues to surprise me everyday.  Love Nancy & Mike.

May 1, 2006 Monday @ 6:00pm

The family made it home today. The long drive back is over.  So far Montana is doing alright.  I will keep you all posted.  Thank you for visiting!

Update April 30, 2006 Sunday @9:00 CST

Getting ready to settle in is the last update that we are getting from Mom on the little man's progress.  Hopefully in the AM after getting a stem cell booster they will be on the road home.  Chemo for this round is over.  Another one bite's the dust!  Montana had spaghetti, garlic bread, and a nice soda for dinner.  What ever Daddy is eating is what he is wanting.  Imagine that!  Keep sending all the messages in the guest book they are appreciated.  More updates when they come in.

Update April 30, 2006 Sunday @ 12:30

Mom and Dad had a few hours sleep last night.  Montana seems to be doing well today.  Hoping to come home tomorrow after a few test's are ran. Mom & Dad want to continue to Thank all of you that have visited and left words of encouragement.  Please continue to pray for the family. 

April 29, 2006 Saturday @ 10:00am

Mom and Dad are tired.  It was a long night.  Montana was crying and sick.  Seem's that chemo is ruff.  Overall he is doing pretty good for what he has been through.  The last round of real strong chemo is going in and will take 72 hours.  Nurses are checking him every two hours and keeping his diaper nice and dry so that the chemo passing through does not burn his skin.  Hopefully they will get to come home Monday.  The stem cell nurses came in this morning and what they are going to do is prepare for a possible fever in about a week.  Now since the family will be home Montana will have to go over to Evansville, IN and receive a round of antibiotics.  They will have to do this to prevent him from deteriorating on the four hour drive to Riley.  Once he arrives he will be admitted and hooked to a machine that will filter out his blood (returning the blood to his body) and separating the good stem cells and the bad ones.  Basically after that is finished and he is discharged then it will be time for another round of chemo.  This is all just a game plan and hopefully he will not get a fever.  Mom & Dad are checking the website from the hospital room.  They appreciate all of the warm wishes, and prayers.  Keep them coming. 

April 28, 2006

Mom reports that the little slugger is hanging in the game pretty well. Chemo is being given and he is doing fairly well. One bag of chemo is going in over a 72 hour period. Mom & Dad are hanging in the game as well. Keep up the prayers they are appreciated. More updates this afternoon!

April 27, 2006

Montana and family left today and as of 7:00 EST he was getting his rounds of chemo. They will be at Riley for the next three days. We will keep you posted on how he is doing.

Update April 25, 2006

Montana is doing well, right now, this next round of chemo will be very hard on him as well as us! He started loosing his hair yesterday. It makes me cry. To know what he has in store for him and how much he has to deal with is an awful feeling. It is probably good that he doesn't know that he has cancer. I will try to report as events happen to keep everyone updated. Thanks again for all your prayers and concern.

Update 4/19/2006

He tolerated the blood transfusion well so we are home and I am back to
work.  The chemo plan has been stepped up since he responded so well to the
first round.  The plan is to after the 5th round to do surgery to take the
tumor off his adrenal gland (kidney) off and then do one more round of chemo
after that then the last thing is to put him in isolation and do a last
chemo which will knock him down so far to kill all of the bone marrow then
transplant him with his own stem cells to replace the bone marrow.  That is
the last thing and down the road but will be the "make or break" with regard
to being in remission or cured.  It will be a long road and he is expecting
that a week after this next round and every round after that to have a
fever/infection and plan for a 3-4 day stay in the hospital.  Also, they are
coordinating down here to do the blood transfusions so that we don't have to
drive to Indy every time (which would be probably every 2-3 weeks).  When he
does get the infection, he will have to have one bag of antibiotics here in
Evansville before we go to Indy because he would deteriorate too much in the
4 hour drive up.  I appreciate everyone's prayers and please keep them
going.  This is a hard road for the little guy but he is a trooper.  It is I
think much harder on me and Mike than him!  Love...

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