Welcome to Jordan's website. Jordan is a 3-1/2 year old boy who suffers from Dravet's syndrome. http://www.ilae-epilepsy.org/ctf/dravet.html and autism.
Dravet's syndrome is a devastating form of epilepsy that begins before the child is one year of age and is characterized by many different seizure types. The seizures are very hard to control with standard anti-epileptic drugs and many times you have to change them repeatedly. Status epilepticus (seizures lasting more than 5 minutes) is common and very dangerous.
We designed this site to hopefully get the word out on Dravet's syndrome and to possibly help others out there whose children may be suffering from this condition, but have no formal diagnosis yet.
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