Hodgkins Lymphoma Awareness

My Journey Battling Cancer & Graft vs. Host Disease
Fighting for my life each day against the odds

Welcome to my web page. After being diagnosed with cancer and going through numerous amounts of treatments, I decided to go onto the world wide web with my story.  In May 2005, at the age of 25 I was diagnosed with Hodgkins Disease Stage IVb, also known as Hodgkins Lymphoma. I have had back to back treatments with no breaks. I had two bone marrow transplants to try to save my life. Unfortunately, my donor transplant in November 2006 caused Graft vs. Host Disease (GVHD). GVHD does not have a cure and can be life threatening. It attacked my cancer but also attacked good cells. Of that affected are my lungs. After going through all protocol treatments and all clinical trials I am now considered terminally ill because there are no treatments left for me. I try to live my life to the fullest one day at a time. There are good days, but there are also bad days. It is a roller coaster with many ups and downs. I have a wonderful family who has been by my side since the beginning of my fight.

After being diagnosed with cancer, there weren't many sources available for researching, or at least I couldn't find any. I had never been the one to go online to find information. I felt alone and scared. Chemotherapy treatments consisted of getting hooked up to IV poles sitting beside of 70 and 80 year olds. I didn't know where to turn to.  I couldn't find anyone near my age.   Here we are a few years later and fortunately we have come a long way. I'm hoping to spread awareness about Hodgkins Lymphoma, since it affects so many young adults.  Many people claim that if you're going to get cancer, Hodgkins is the "good" cancer to get.  It is very misunderstood.  There needs to be more awareness and more research for this disease.  We often think of cancer as an "old person's disease" but that is not true.  Cancer knows no age nor race.  It doesn't discriminate. We all need to be aware of signs and symptoms and realize that we're not invincible.

My name is Jennifer Willey and I live in a small town in Maine called Kennebunkport.  Maybe some recognize Kennebunkport since former president George H. Walker Bush has a summer home here.  Yes, I've met him and Barbara!  I've lived here my whole life. It's beautiful with many trees around and only five minutes to the Atlantic ocean.

I hope to reach out to others that are battling Hodgkins Disease or some other type of cancer, and those that are healthy or living with another type of illness.   I believe I've finally found my "mission" in life, that is to help others.  I am a wonderful listener and love to talk. I would love to hear from you, so please sign my guestbook.

I would also like to mention my true inspiration, Alese Coco. She was a beautiful young lady who fought a long hard battle with Hodgkins Disease.  She has her own web page at: http://fight2win.org/ Please visit her site if you have not done so already. 

As Alese said, "Fight 2 Win."  I have already done the same.

Keep Smiling, Fighting, & Laughing ™

Visits since August 5, 2007

Please know that I am not a medical professional and any statements made by me or others on this site do not constitute medical fact. I am someone that is living through Hodgkins Lymphoma and Graft vs. Host Disease and am only sharing what I have been through and am currently going through. Please also note that I do not personally endorse, agree with or attest to the accuracy of any excerpt, site or quote listed within this site or that is linked off of this site. If you have any questions on your health and medical safety, it is always important to contact your physician or a medical professional.


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