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Dysautonomia Information

Dysautonomia Websites

These websites have a lot of information and are easy to understand.  They also all have support forums for those affected by dysautonomia.

Dysautonomia Information Network:  www.dinet.org

National Dysautonomia Research Foundation: www.ndrf.org

Dysautonomia Youth Network of America: www.dynakids.org

Dysautonomia Brochures and Easy Reading

DINET brochure:  www.dinet.org/images/DINETservicesbrochure2.pdf

DYNA brochure:  www.dynakids.org/Documents/quadfold.pdf

NDRF handbook:  www.ndrf.org/NDRFHandbook.htm

Videos about POTS

Medical Edge from Mayo Clinic:  www.medicaledge.org/2006june-3.html

Mayo Clinic Podcast on POTS:  www.digitalpodcast.com/detail.php?id=17188

POTS on the news in Canada:  www.youtube.com/watch?v=9k3PIRMkLjU...ated&search

Articles on Dysautonomia

"The Postural Tachycardia Syndrome: A concise Guide to Diagnosis and Management":  www.medscape.com/viewarticle/522421_print

Postural Tachycardia Syndrome:  http://knol.google.com/k/blair-grubb/postural-tachycardia-syndrome/z0Lsji-N/oPFBfQ#

Syncope/Fainting:  http://knol.google.com/k/blair-grubb/syncopefainting/ICrKBe32/k9zEgg?locale=en#

Fainting:  www.universityhealthmatters.com/article.php?artid=4

Overview of POTS and NMH:  www.pediatricnetwork.org/medical/OI/johnshopkins.htm

 "Postural Orthostatic Tachycardia Syndrome: The Mayo Clinic Experience":  www.mayoclinicproceedings.com/pdf/8203/8203a5.pdf

Help for People With Disabilities

Joni and Friends: www.joniandfriends.org

Independent Living Centers:  www.ilusa.com/links/ilcenters.htm

Other Invisible Illness Information

But You Don't Look Sick:  www.butyoudontlooksick.com  (Make sure to also check out "The Spoon Theory" on this site:  www.butyoudontlooksick.com/the_spoon_theory

Chronic Fatigue Immune Dysfunction Syndrome Association of America:  www.cfids.org

Gastroparesis and Dysmotilities Association:  www.digestivedistress.com

National Alliance for Myalgic Encephalomyelitis:  www.name-us.org

National Fibromyalgia Association:  www.fmaware.org

Ehlers-Danlos Syndrome:  www.ehlers-danlos.org

                                      www.ednf.org

Lyme Disease:  www.openeyepictures.com/underourskin

National MS Society:  www.nationalmssociety.org

Cranberry Photo

Cranberry picture compliments of Free Digital Photos:  www.freedigitalphotos.net