Welcome!
Hi!! I'm Colleen. I have created this website for a reason. I have a condition called Turner's Syndrome. Most girls who have this are mosaic or have full blown Turner's. I, however, am a full blown Turner's girl. All of the cells in my body are missing a chromosome. I do have to deal with injections every night(for my growth), but I can handle it! Anyway , I just thought that this website would be a good idea for TS girls to learn a little more about each other. Enjoy the "NEW" website! 
My Life
I've known that I have TS since I was 3 years old. It was hard for my mom and dad when they found out. I was usually really sick which is where all the doctor visits came in. We would learn new information , like how tall I was, my general health, and how I was doing with the injections. But I got through all of those! I do have some difficulties in school too. Math is really hard for me. Like it probably is for most TS girls. I do like music. Country is my favorite. Country 92.5 is my favorite station. I won a lot of awards in elementary school (I go to Saint Joseph's High School now) so that makes me, my mom , and my dad very happy!! I do have some hearing problems and I can still hear well , but my ears usually get ear infections. Lucky I haven't had one in a while! I had nine(yes, nine!) sets of tubes. 
The song you hear playing is "Wonder" , by Natalie Merchant. It was a song that told my dad I was going to be ok. I , however , seem to like the song too. I actually think of how lucky I am when I hear it. I wouldn't have been alive if it weren't for all the meds and doctor's visits! It reminds me of , well ,me! The lyrics are really similar to how my life goes. You know , injections , and just being sick all the time. My mom was the one who told me about the song , and the whole story about my dad and the song. I felt pretty weird about the whole thing , but at least the song means something! The lyrics are below:
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Wonder:
Doctors have come from distant cities
Just to see me
Stand over my bed
Disbelieving what they're seeing
They say I must be one of the wonders
Of god's own creation
And as far as they can see they can offer
No explanation
Newspapers ask intimate questions
Want confessions
They reach into my head
To steal the glory of my story
They say I must be one of the wonders
Of god's own creation
And as far as they can see they can offer
No explanation
O, I believe
Fate smiled and destiny
Laughed as she came to my cradle
Know this child will be able
Laughed as my body she lifted
Know this child will be gifted
With love, with patience and with faith
She'll make her way
People see me
I'm a challenge to your balance
I'm over your heads
How I confound you and astound you
To know I must be one of the wonders
Of god's own creation
And as far as you can see you can offer me
No explanation
O, I believe
Fate smiled and destiny
Laughed as she came to my cradle
Know this child will be able
Laughed as she came to my mother
Know this child will not suffer
Laughed as my body she lifted
Know this child will be gifted
With love, with patience and with faith
She'll make her way
Medical Info on Turner's
These are the observable signs of Turner Syndrome:
• short stature
• webbed neck
• lack of secondary sex characteristics
• a hollow appearance to the chest
• lack of menstruation
• low hairline
• "droopy" eyelids.
BUT EVERY GIRL'S SYMPTOMS ARE DIFFERENT. I had swollen feet at birth(doctors thought it was poor circulation) , I obviously have a short stature (but with my growth hormones I will hopefully reach 5'1 or 5'2) . I have a low hairline with no webbed neck. I have had zillions of ear infections, but have been very lucky the last few years. I do have a small heart condition. It just means I need to take medication before having my teeth cleaned. My biggest challenge, I feel, is my math weakness. It's a pain in the butt!! I take an estrogen patch(on my hip) so I will be able to develop normally.
My article on TeenInk.com!
Hi everyone!
I just thought I'd let you know that a little piece I wrote was published online, in TeenInk RAW! It is called Turner's Syndrome Awareness. You can read the piece right here, or go to http://teenink.com/raw/Health/article/128546/Turners-Syndrome-Awareness/ to read it.
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TURNER'S SYNDROME AWARENESS:
Most people see me as your ordinary thirteen year old girl. Well, I am, but there is actually a different side to this story! I was diagnosed with Turner’s Syndrome at the age of three years old. Turner’s Syndrome is a chromosomal disorder that only affects females, with the fact that one of two “X’ chromosomes is either defective or missing.
People who don’t know that I have TS obviously can’t see anything wrong with me. But, if I were to sit down and tell them about it, they would see. Also, no one sees how crazy my life can be with having doctors appointments, shots for my growth every night, and much more!
I think people in this world need to be more aware of TS, and how it affects girls that have it. TS is not a very well known syndrome, so I think it would help if doctors and other girls like me tried to figure out more about it. The world would be a better place for girls dealing with TS if this were to happen. Parents wouldn’t have to worry, and girls around the world who have TS wouldn’t feel so alone. As for me, I’ve created websites and blogs to help these people. I get messages from parents and their daughters saying how grateful they are , and how they think what I’m doing is a great thing. Some TS girls who live close by ask to meet me, so that they can talk about their experiences, and ask about mine.
So, if you’re reading this and you are a parent of a TS girl, a girl who has TS, or just a person who’s interested, I’m asking you to please spread the word! While you do, think about what you’re doing for other girls around the world who have TS! You’ll be glad you did it , trust me!