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   Hi! I'm Colleen. I have created this website for a reason. I have a condition called Turner's Syndrome. Most girls who have this are mosaic or have full blown Turner's. I, however, am a full blown Turner's girl. All of the cells in my body are missing a chromosome. Anyway , I just thought that this website would be a good idea for TS girls to learn a little more about each other.


I want this to be something that you will all enjoy, and I am hard at work making it better. There will be a lot of changes made to the site in the near future, so please be patient.


Enjoy the NEW website! 

XOXO - C

 


 

My Life

I've known that I have TS since I was 3 years old. It was hard for my mom and dad when they found out. I was usually really sick which is where all the doctor visits came in. We would learn new information , like how tall I was, my general health, and how I was doing with the injections. But I got through all of those! I do have some difficulties in school too. Math is really hard for me, just as it probably is for most TS girls. I do like music. Country is my favorite. Country 92.5 is my favorite station. I won a lot of awards in elementary school (I now attend Curry College), so that makes me, my mom , and dad very happy!! I do have some hearing problems and I can still hear well , but my ears usually get ear infections. Lucky I haven't had one in a while! I had nine(yes, nine!) sets of tubes.  

The song lyrics you see below are from "Wonder" , by Natalie Merchant. It was a song that told my dad I was going to be ok. I , however , seem to like it too. I actually think of how lucky I am when I hear it.  It reminds me of , well ,me! The lyrics are really similar to how my life goes.  My mom was the one who told me the whole story about my dad and the song.


Wonder:

 Doctors have come from distant cities
Just to see me
Stand over my bed
Disbelieving what they're seeing

They say I must be one of the wonders
Of god's own creation
And as far as they can see they can offer
No explanation

Newspapers ask intimate questions
Want confessions
They reach into my head
To steal the glory of my story

They say I must be one of the wonders
Of god's own creation
And as far as they can see they can offer
No explanation

O, I believe
Fate smiled and destiny
Laughed as she came to my cradle
Know this child will be able
Laughed as my body she lifted
Know this child will be gifted
With love, with patience and with faith
She'll make her way

People see me
I'm a challenge to your balance
I'm over your heads
How I confound you and astound you
To know I must be one of the wonders
Of god's own creation
And as far as you can see you can offer me
No explanation

O, I believe
Fate smiled and destiny
Laughed as she came to my cradle
Know this child will be able
Laughed as she came to my mother
Know this child will not suffer
Laughed as my body she lifted
Know this child will be gifted
With love, with patience and with faith
She'll make her way

 

 

Medical Info on Turner's

These are the observable signs of Turner Syndrome:

• short stature
• webbed neck
• lack of secondary sex characteristics
• a hollow appearance to the chest
• lack of menstruation
• low hairline
• "droopy" eyelids. 

BUT EVERY GIRL'S SYMPTOMS ARE DIFFERENT.  I had swollen feet at birth(doctors thought it was poor circulation) ,  and I obviously have a short stature (but with my growth hormones I was able to reach 5'3) . I have a low hairline with no webbed neck.  I have had zillions of ear infections,  but have been very lucky the last few years. I do have a small heart condition. It just meant I needed to take medication before having my teeth cleaned. My biggest challenge,  I feel,  is my math weakness. It's a pain in the butt!! I  take an estrogen patch(on my hip) so I will be able to develop normally.

 

 

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