Cure for Chiari

Kristen's Journey with Hydrocephalus, Epilepsy, Chiari, TCS, EDS, Craniocervical Instability, Cranial Settling, Retroflexed Odontoid, Basilar Invagination and POTS

 

North Shore University Hospital

300 Community Drive

Manhasset, NY, 11030

Hospital Phone (516) 562-0100

 

I am a 24 year old woman who has throughout my life been living with many conditions - trying to bring more awareness of each one especially, Arnold Chiari I Malformation, Tethered Cord Syndrome and Ehlers Danlos Syndrome.  Due to the lack of research, many are misdiagnosed with, Fybromialgia, Chronic Fatigue Syndrome or MS.  My hopes with making this site is not only to keep family and friends informed about my progress and condition, but to bring awareness to all of these conditions.  Please sign my guestbook if you have stopped by, so I know you were here.  Thanks!                                                    

 

                                         

 

   

                                                                                                                                                                                                                                  

 

 

 

 

  

 

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