writes Mithran Samuel
Expansion
of direct payments and individual budget schemes look likely. The
policy of extending cash for care schemes was promoted by health secretary
Patricia Hewitt and her ministers during 2006. However confusion exists
over the variety of initiatives and take-up is variable. Direct payments and
individual budgets are universally applauded but doubts about the viability of
implementation persist. Risk, cost, and professionals' attitudes towards the
schemes are all issues.
Key
policy documents highlighting cash for care schemes in 2006 included the health
and social care white paper in January and a review of the
social care workforce Options
for Excellence in October. The latter mentions remodelling social
workers roles to improve outcomes but is short on detail.One of the areas that
might impact on roles is direct payments and individual budgets.
So what exactly are direct payments and individual budgets?
Direct
payments are cash payments given to service users in lieu of community care
services they have been assessed as needing, and are intended to give users
greater choice in their care. The payment must be sufficient to enable the service
user to purchase services to meet their needs, and must be spent on services
that users need.
Like
commissioned care, they are means-tested so assume that, in many cases, people
will contribute to the cost of their care.
Direct
payments confer responsibilities on recipients to employ people or commission
services for themselves. They take on all the responsibilities of an employer,
such as payroll, meeting minimum wage and other legislative requirements and
establishing contracts of employment.
Some of these services can be contracted out and many councils have
commissioned support organisations to help service users handle these
responsibilities.
Individual budgets
differ in two respects from direct payments. Firstly, they go beyond social
care, to cover Supporting People, Disabled Facilities Grant, Independent Living
Fund, Access to Work and community equipment services. And secondly they set an
overall budget for all of these services, which users can choose to take as
cash payments, services or a mixture of both.
As a result, they provide a potentially good option for people who do not want
to take on the responsibilities of a direct payment.
Background
Direct payments were introduced by
the Community Care
(Direct Payments) Act 1996 and came into being in April 1997 for adults of
working age. They were extended to older people in 2000.
Since April 2001 direct payments have been available to carers, parents of
disabled children and 16- and 17-year-old service users. Availability has also
been extended to people with short-term needs, like those recovering from an
operation, and to Children Act services to help disabled parents.
In April 2003, regulations
came into force requiring councils to offer direct payments to all people using
community care services. They do not apply to long-term residential care or
services directly provided by councils, while they cannot be given to an agent
to manage services on behalf of a person who lacks capacity.
Individual
budgets were first mooted in January 2005 in a paper by the Prime Minister's
Strategy Unit, and seen as a way of personalising services.
However,
at the time a similar idea was already being piloted by the In Control Programme, which was set up
in 2003 by Mencap and the Department of Healths Valuing People Support Team
and initially targeted at people with learning difficulties.
In Control is based on allocating a budget to an individual, on a
self-assessment of their care needs, and enables them to choose the best mix of
services and/or cash to suit their needs or wishes.
Individual
budgets were taken forward in the March 2005 adult
green paper and in November of that year the Department of Health announced
they would be piloted
in 13 councils.
The pilots are geographically spread, with some covering a wide range of client
groups and others covering just one or two. The pilots are receiving support
from a team from the DHs Care Services Improvement Partnership and people who
have been involved with the In Control scheme.
The
pilots are also being evaluated by
a team from the Personal Social Services Research Unit, York Universitys
social policy research unit and Kings College Londons social care workforce
research unit
Take-up
Take-up of direct payments has
risen significantly in recent years but still remains low as a proportion of
people receiving services.
As of March 31, 2006, 32,000 adults and older people in England were receiving
a direct payment, up from 22,100 the previous year. In Scotland,
payments rose from 1438 to 1829 between 2005 and 2006.
However, just two per cent of the 650,000 eligible older people in England
were receiving a payment in March 2006.
Relatively low take-up has been explained
in two ways the reluctance of local authorities to promote direct payments
and bureaucratic barriers they place in the way of take-up; and reluctance on
the part of service users to take them up due to the real or perceived burdens
they bring.
On the latter point, the introduction of
individual budgets is designed to reduce peoples reluctance to take control of
their care by lowering the demands in terms of employing and managing people.
However, a 2004 report
by the Commission for Social Care Inspection found many barriers originated
from councils including:
Lack of information for service
users.
Low staff awareness of direct payments and what they are trying to
achieve.
Patronising attitudes on the part of staff about the ability of people
to manage a direct payment.
Inadequate or patchy advocacy or support services for direct payment
users.
Unnecessary and bureaucratic paperwork.
There is no doubt councils are getting
better on direct payments but the step change in take up demanded by government
and independent living activists has not happened yet.
Cost
One potential reason for this is the
cost of direct payments. A report by the Audit
Commission in May 2006 found direct payments were a net cost for each of
10 councils studied.
While savings were made through service
users taking responsibility from care managers for finding and administering
care, the research found that these were more than offset by the costs of
supporting users and providing training to staff.
It suggested that the only way councils
could save money was by making the value of direct payments lower than the
price of an equivalent level of commissioned care. However, in practice this
may not penalise service users because they may be able to buy in services at a
cheaper cost than councils by using smaller agencies or family and friends.
When councils commission providers they
typically have to pay a premium to cover management and infrastructure costs.
Risk
Another key issue in the direct
payments debate is around risk. Independent living activists have long argued
that to have true independence, service users should be able to employ who they
want to care for them.
Adult protection campaigners, while admitting the importance of independence,
have argued that people employed as personal assistants should face the same
employment checks as others to ensure users safety.
Currently there are no plans to force
direct payment users to submit those who they employ to checks. The government
resisted attempts to impose checks through the Safeguarding Vulnerable Groups
Act 2006, which will create a vetting
and barring scheme for people working with adults and children by
2008.
But the debate is unlikely to die in a
hurry as it is being considered as part of the roll-out of registration in the
social care workforce. While direct payment employees are not due to be
registered from next year, when the register is opened up to domiciliary and
residential care staff, discussions continue over whether they should be
included.
Doing so would compel a service user to only employ a registered person.
Find out more
Individual
budgets: review of research by the Social Care Institute for Excellence
Bid
to raise direct payments take up
Wiltshire
direct payment cuts: users have their say
Judge
overturns direct payment restrictions
Direct
payments divide union ranks
Survey
highlights direct payments' true costs
Government
blocks measures to vet those employed by direct payments
Association
of Directors of Social Services
Direct payments for people with mental health problems: A guide to action
February 2006
We want to give people greater choice and control over how their needs should be met
it is clear that direct payments give people that choice and control.
What are direct payments?
This guide is about the payments that are made to individuals who have been assessed as needing social care services in order that they can make their own arrangements to meet their needs.
Direct payments guidance: community care, services for carers and childrens services (direct payments) guidance England 2003 (Department of Health DH) says:
The purpose of direct payments is to give recipients control over their own life by providing an alternative to social care services provided by a local council. A financial payment gives the person flexibility to look beyond off-the-peg service solutions for certain housing, employment, education and leisure activities as well as for personal assistance to meet their assessed needs. This will help increase opportunities for independence, social inclusion and enhanced self-esteem.
Disabled people led the campaign for direct payments as a means of achieving the choice and control necessary to achieve independent living.3 The principles of independent living are consistent with the concepts of recovery and social inclusion, and the operation of the
Care Programme Approach (CPA):
Effective care co-ordination should facilitate access for individual service users to the full range of community supports they need in order to promote their recovery and integration.
Direct payments were originally introduced at the discretion of each local authority:
for disabled adults of working age in April 1997;
for older people in 2000;
for carers, parents of disabled children and for 16 and 17 year olds (young adults) in 2001.
Since April 2003, regulations have been in force that require councils to make direct payments to those people who are able to choose to have them and who wish to have them.
Direct payments for people with mental health problems:
A guide to action
There are some people who are currently excluded from receiving direct payments. These are people whose liberty to arrange their own care is restricted by a court order or legislation, including certain sections of the Mental Health Act 1983.6 These restrictions are currently being reviewed within the social care Green Paper, Independence, Well-being and Choice. There are some things that direct payments cannot be used for, such as longer-term residential care or to purchase services direct from the local authority.
The purpose of this guide to action
This guide sets out good practice in relation to making direct payments more accessible to people with mental health problems. It is intended to support the efforts that all local authorities, primary care trusts, mental health trusts and non-statutory providers of mental health services and support will wish to make to ensure that direct payments become a standard option within mental health services. The number of people receiving direct payments is currently a key performance assessment framework indicator (AO/C51) for local authorities. Additional information to support implementation will be available through:
a guide for people who are eligible to use mental health services and for carers (see National Institute for Mental Health in England NIMHE in the Further information and resources section);
the NIMHE Direct Payments Practice Exchange Network (see NIMHE in the Further information and resources section).
The Government is determined that the option of direct payments should be available to all those who are eligible to use them:
you should be discussing direct payments with everyone who is eligible at assessment and review and in a way that means they see them as a realistic option. I know that isnt happening in many cases, but now is the time to equip staff with the drive, skills and knowledge to make it happen.
While indicating a steady overall increase on previous years, official figures for March 2005 (Figure 1) show that almost a quarter of all local authorities in England were not making any direct payments in lieu of mental health services, and a further half were making between one and five. At the same time, five authorities were making between 21 and 30, with three others making 56, 82 and 137. When compared to uptake by other groups, all local authorities can improve access to direct payments in lieu of mental health services.
Even accounting for the widely differing populations between authorities, it is clear that the majority of authorities and their partners need to take significant steps in achieving improved access.
Figure 1. Numbers of direct payments made by local authorities in England to people eligible to use mental health services (at March 2005) Source: Commission for Social Care Inspection
The successful implementation of direct payments within mental health services requires collaboration between all parties involved in commissioning and providing those services, working alongside service users and carers, advocacy organisations and direct payments support services. There is no need for pilot schemes; sufficient knowledge on the successful operation of direct payments has been gained. It is time for action.
Towards independent living: promoting recovery and inclusion
Government policy on direct payments is clear:
Improving the Life Chances of Disabled People 10 describes direct payments as the most successful public policy in the area of social care in recent years. The report prepares the way for individual budgets for disabled people, to bring together the services to which they are entitled and give them greater choice over the mix of support they receive in the form of cash and/or direct provision of services.
Independence, Well-being and Choice 11 sets the direction for increased access to direct payments for groups where take-up has been low, such as people with mental health problems, in the context of positive risk-taking, adequate information, individually tailored assessment (including self-assessment) and a move towards individual budgets.
The Direct Payments Guidance 12 provides local authorities with the means to carry out their duty to make direct payments to those people who are eligible and are willing and able (alone or with assistance) to use them. This guidance and subsequent ministerial statements confirm the Governments intention that all authorities must be making direct payments routinely available to people with mental health problems.
Numbers of people receiving a direct payment
Number of authorities
The production of this guide, to promote direct payments within mental health services as a means of facilitating greater social participation, is one of the actions arising from the Social Exclusion Unit report Mental Health and Social Exclusion.13
Within the Health and Social Care Standards and Planning Framework 2005/062007/08 there is reference to mental health services addressing social exclusion through tackling unemployment and social isolation. Direct payments is one approach to achieving this.1
Implementing direct payments within mental health services
DH guidance on direct payments requires every local authority to set up a direct payments scheme to make the payments available. This should include the lead officer for implementing direct payments, the scheme manager (where this is a different person), finance staff who administer direct payments, and arrangements by the local authority to train and support users and potential users of direct payments and all staff who are involved in the offering and making of direct payments.
The direct payments support service is the part of this scheme which provides advice, support, and sometimes training to users and potential users of direct payments. It can be provided directly by the local authority but is generally provided under contract by one or more voluntary organisations or organisations of disabled people. Support provided through voluntary/recipient-run organisations has been shown to be particularly effective and valued by recipients.
For adult mental health services, the duty on councils to make direct payments to meet social care needs can be incorporated into the CPA, the joint health and social care assessment framework for all adults of working age in contact with the secondary mental health system (health and social care), which should provide access, through a single process, to the support and resources of both health and social care.
The criteria for eligibility to receive integrated mental health services, even where a formal partnership arrangement is not yet in place for the delivery of statutory mental health services, should be based on Fair Access to Care Services.
Most existing literature refers only to social workers offering direct payments. The integration of mental health services involves the incorporation of local authority care management within a single process (the modernised CPA) by which all care co-ordinators are responsible for assessing both health and social needs. Thus all care co-ordinators need to be able to offer direct payments.
Figure 2 shows the relationship of these components in the implementation of direct payments as a standard option within the CPA in mental health services.
Figure 2: Straightforward access and support for direct payments for people who are eligible to receive mental health services
Primary care trust/s
Jointly commission mental health services and agree joint eligibility criteria
Local authority
Jointly commission mental health services and agree joint eligibility criteria
Provide direct payments scheme
Commission direct payments support service/s
Local authority direct payments scheme
Recognises joint eligibility criteria
Provides information and guidance
Supports care co-ordinators and managers
Monitors use of direct payments
Direct payments support service
Usually non-statutory, functions can be split between different organisations
Supports people to consider and/or use direct payments
Mental health trust
Applies joint eligibility criteria for health and social care services Identification of ways in which needs can be met Agreement over ways in which needs will be met by a combination of:
Health interventions/ care co-ordinator support Other provided service/s
Direct payments
CPA
Assessment of health and social needs
Risk assessment
Eligibility check for direct payments
A whole system approach
A whole system approach is one which looks both within and beyond mental health service provision at the whole range of services and support that a person with mental health needs might utilise to enable them to live their life as they wish. It is an approach that is vital to the effective development of mental health services, and one which is promoted by the use of direct payments.
Commissioners and senior managers need to work together to ensure that adequate budgetary provision is made available within local authorities and mental health services to:
meet the increasing take-up of direct payments;
meet the costs of supporting implementation.
This means that service providers and commissioners will need to consider:
the implications of increasing direct payment use on existing services and on their contracting arrangements;
engaging in discussions with all stakeholders about how the requirement to make direct payments can be successfully managed. In addition to the impact on day and support services, this should include the potential impact of direct payments on in-patient and residential care use.
All stakeholders need to be engaged. Whether achieved through an existing or new group, the overseeing of the process of implementing and supporting routine access to direct payments by people eligible to use mental health services should include representation from service user groups, carers groups, black and minority ethnic groups, advocacy groups, mental health commissioners, local authority direct payment scheme, direct payment support services, primary care trust/s, mental health trust/s, CPA lead officer and the voluntary and community sector.
It will be essential to establish the relationship of this group to other related forums, such as the local implementation team, the Mental Health Partnership Board, and the arrangements put in place to oversee implementation of the actions required by the Social Exclusion Unit report.
Taking a lead
While the initiative and drive for the development of adequate direct payments schemes will come from many quarters, the leadership should come from the local authorities and primary care trusts who share the lead responsibility for local implementation of the actions from Mental Health and Social Exclusion.20
They are engaged in two separate but interlinked aspects of commissioning for direct payments in mental health services:
the provision of a generic direct payment scheme by the local authority, and the commissioning (or direct provision in some cases) of direct payment support services as part of this scheme;
commissioning of the mental health services that make direct payments.
Commissioners of mental health services, therefore, need to understand the nature and purpose of direct payments well enough to be able to ensure that they are available within those services in accordance with government policy. In order to achieve this, there needs to be adequate provision for the making of direct payments through the CPA process. Thus all commissioners need to consider working together to ensure that:
the provision of direct payments to people with mental health needs is actively promoted by the local authoritys direct payment scheme and in the commissioning arrangements for direct payment support services and mental health services;
a single, joint eligibility process is in place for access to health and social services which is recognised by the direct payment scheme and mental health managers as giving access to direct payments to meet social care needs;
sufficient funding is available from the local authority to meet the anticipated demand for direct payments;
the process for securing a direct payment from within mental health services is the same as the process for securing a provided service. This includes approval of CPA assessment decisions, speed and ease of access and the applicability of a financial assessment;
direct payment support services are able to offer adequate support to people with eligible mental health needs who wish to consider or use direct payments;
where the direct payment scheme and/or the direct payment support service do not have adequate capacity or knowledge to provide support to people with mental health problems, staff should be recruited or seconded for this purpose;
adequate training is made available on the local authority direct payment scheme and its operation within the framework of integrated mental health services. This should be provided for all direct payment scheme and support services staff and all mental health service managers and care co-ordinators;
direct payments are incorporated into the CPA process as a standard option for every assessment and review;
procedures are in place to ensure that arrangements for the making and receipt of financial payments do not unduly delay the start of direct payments.
All of this work should be undertaken in partnership with the stakeholder group.
Making direct payments accessible to people who might use them
The local authoritys direct payments scheme (and all contracted arrangements it makes to support people to use direct payments) should reflect the eligibility of mental health service users in its literature and promote their access to the scheme in its practice.
The CPA process should provide support for people to find out more before agreeing how their assessed needs should be met. Provision should be in place for interim support arrangements to be made under the CPA if necessary. It should also facilitate the presence of, or access to, an advocate or other direct payment support worker to assist individuals if they wish for it, to look at what their options to meet their eligible needs might be during the assessment process.
Councils will wish to ensure that local support services are sufficiently accessible to everyone eligible to receive direct payments
Support services may need to contract-in people with specialist skills as appropriate. Adequate information on all aspects of considering and using direct payments should be readily available to those eligible to use mental health services. Practical support should be available at every stage, for example:
finding out about direct payments;
considering whether to use a direct payment;
preparing for assessment or review meetings;
considering how best to meet needs using a direct payment;
managing the payment/recruitment and employment or use of agency staff;
changing the detail of a direct payment or ending one.
Access to training that will facilitate the successful use of direct payments should be made available to people who are eligible to use mental health services. This includes making specific arrangements to ensure that appropriate information and support is available to people whose needs have been recognised as being less well served by mental health services and/or who are less likely to access provided services, such as some people from black and minority ethnic communities.22 Similar arrangements should be in place for those carers of people with mental health needs who are eligible to receive carers services.
Making direct payments accessible: staff training and procedures
CPA training should incorporate direct payments as a standard option, including providing staff with adequate preparation and indicating the sources of ongoing support available to enable them to achieve this in their routine practice.
Direct payments fit easily alongside CPAs four main elements:
Main elements of the CPA How direct payments fit
Systematic arrangements for assessing Identification of eligible social needs the health and social needs of people accepted into specialist mental health services
The formation of a care plan which Offering direct payments as an alternative identifies the health and social care way of meeting these eligible social needs required from a variety of providers
The appointment of a key worker to keep Care co-ordination role remains the same. in close touch with the service user and Monitoring includes contact with local to monitor and co-ordinate care authority finance section. Level of contact with service user (and sometimes with personal assistant/support worker) negotiated as part of care plan Regular review and, where necessary, Option of direct payments remains available agreed changes to the care plan for eligible social needs Guidance to staff should be succinct and unambiguous, particularly in relation to the definition of health care (which involves a clinical/medical intervention) and social care (which includes access to day services, support worker services, respite breaks, non-specialist alternative and physical therapies, education, leisure and employment opportunities ).
The additional forms required for securing a direct payment should be integrated into CPA paperwork and kept to a minimum. Training and guidance must include the arrangements for carers assessments and the making of direct payments to carers eligible to receive social care services.
Specific training on direct payments for care co-ordinators and managers is also essential and should involve representatives from the direct payments scheme, the finance department and the direct payments support service. Each should explain their roles, the processes in place and how to access support from them at any stage during the offering or making of direct payments. Whenever possible, training should involve contributions from people using direct payments. Formal training should be supplemented by a variety of structured and developmental activities. Individual supervision, team and locality meetings are some of the settings in which different issues can be addressed.
Training should include the use of crisis plans, advance statements and third party support at times of crisis as means of managing risk,25 and the use of self-assessment formats to enable people to be better prepared for assessments and reviews.26 One of the intentions of direct payments is that people are enabled to determine for themselves the best way of meeting their needs:
As a general principle, local councils should aim to leave choice in the hands of the individual by allowing people to address their own needs as they consider best, whilst satisfying themselves that the agreed outcomes are being achieved.
For this reason it is important that there is maximum flexibility around whether particular needs are met through health care or social support, or a combination of the two. Other workers in mental health services, and those who act as advocates for people with mental health problems and carers, should be made aware of the nature and purpose of the direct payments scheme, the place of direct payments within the CPA and the role of the direct payments support service. These other workers will often have the most contact with individuals who might use direct payments, and their knowledge of and attitudes towards
direct payments are likely to be influential. They should be making information on the local direct payments access and support arrangements available to people who use their services.
Where workers support people in preparing for or attending assessment or review meetings, they should consider their role in supporting self-assessment.28
Figure 3 shows how direct payments can be incorporated into the CPA process.
Direct payments for people with mental health problems: A guide to action
Figure 3: Incorporating direct payments into the CPA
Is individual excluded from receiving direct payments?
Explain direct payments scheme and support availableand discuss options of either direct payments ofprovided services, or a combination of both
Does individual feel able to make an informed decision about direct payments?
Ensure individual has opportunity to accessinformation and support swiftly
Can the assessment process be halted untilinformation/support has been accessed?
Agree providedservices forthe interim
Discuss and agreeprovided services
Discuss and agreeany provided servicesrequired
Make arrangementsfor services and inform individual oftheir right to use complaints procedures and provide advocacy contact
Discuss and agree interim arrangements
Reconvene once information/support has been accessed
Does the individual want to pursue direct payments for some or all of their social needs?
Discuss the ways in which direct payments will be used to meet assessed needs
Does the care co-ordinator believe that the individual can meet their assessed needs by the means they propose and that identified risks are manageable?
Quantify support required and make arrangements for payments to commence
Will there be a delay in receiving payments?
Ensure person has full access to available information and support when the direct payments commence
Complete CPA assessment Risk assessment Check if excluded from receiving direct payments
Eligible needs
Social activity/support
Discuss and agree how to meet these and/or Health intervention
Discuss and agree provided services
Direct payments for people with mental health problems: A guide to action
Direct payments in practice
People who are eligible to use mental health services (and carers eligible to receive carers services) can expect to:
have a clear statement of the needs for which they are eligible to receive services;
be given the maximum possible choice and control in how their eligible needs are met;
be offered the option of direct payments at every assessment and review meeting or have a clear statement of the reasons if they are excluded from receiving direct payments;
be provided with adequate information about direct payments and sufficient time in order to be able to make an informed choice whether to use them or not;
be given the details of people who can support them to consider and use direct payments;
be able to use a mixture of direct payments and provided services if they choose;
be able to stop using direct payments at any time and return to using a provided service.
In order to achieve this, action is required from managers and care co-ordinators.
Managers need to consider the following:
promote direct payments as a standard option within the CPA, and ensure it is included within CPA training;
promote the values of independent living and recovery as core to the provision of services, to support a positive and pro-active approach to direct payments;
work with the local authority scheme, the support service, service user and carer groups and practitioners to achieve a straightforward and co-ordinated process for considering, applying for and accessing support to manage direct payments;
ensure that adequate information and training is provided to those who might wish to use direct payments and all care co-ordinators;
ensure that all teams understand their responsibilities in respect of offering direct payments;
make specific information available in appropriate formats/languages to all those who might wish to consider or use direct payments to meet their social care needs.
This should be consistent with but additional to the direct payment schemes generic information;
record levels of direct payment uptake by people with mental health problems to inform future planning and set current targets;
where appropriate, work with commissioners to ensure adequate budget setting/flexibility.
Assessors/care co-ordinators need to consider the following:
assess peoples eligible needs and record them clearly before beginning the process of discussing how those needs might be met;
support those they work with to build their future around their aspirations and abilities, and work through risk assessment procedures to minimise risks to an acceptable level wherever possible;
always check whether or not a person is excluded from receiving direct payments;
offer the option of direct payments to all those who are eligible to receive them at every assessment and review;
ensure that all people eligible to receive mental health services are made aware of how to access information and support to consider and/or use direct payments;
be fully aware of DHs guidance, the local authority direct payments policy and the operation of their local authoritys scheme/s, and of how to get support and advice for themselves about direct payments.
Acknowledgements
We would like to thank all the individuals and organisations who were consulted during the development of this guidance. In particular we would like to thank Julie Charles, Tina Coldham, Pauline Heslop and Donna Lawrence for their individual contributions, and members of the following organisations: Equalities National Council, Health and Social Care Advisory Service, National Centre for Independent Living. We would especially like to thank Robin Murray-Neill, who has been central to the development of this guide.
Local authorities: Cambridgeshire, Essex, Hampshire, Lancashire, Leicestershire,
Lincolnshire, Norfolk, Peterborough, Suffolk, West Sussex
Mental health trusts: Norfolk and Waveney, North Essex, South Essex, West Sussex
Direct payments support services: Essex PASS, Suffolk PASS
Advocacy services: Independent Living Advocacy (Essex), East Suffolk Advocacy Network,
Equalities, Southampton Centre for Independent Living
Mental health policy/practice: DH, NIMHE, Social Inclusion Team, CSIP Regional
Development Centres, Social Care Institute for Excellence, CPA Association
Further information and resources
Department of Health
tel (020) 7210 4850
email: OPDEnquiries@doh.gsi.gov.uk
Information on policy and guidance can be found by visiting the DH website.
Directgov
Information about accessing government services, including financial support, can be found on the Directgov website.
Equalities National Council for Disabled People and Carers from Black and Minority
Ethnic Communities
Waltham Forest College
707 Forest Road
London E17 4JB
tel/fax (020) 8527 3211
email: enquiries@equalitiesnational.org.uk
Equalities work includes support to people to obtain direct payments.
They have produced a video on the subject called Breaking Barriers. Details are available from the address above.
Health and Social Care Advisory Service
Kings Fund
1113 Cavendish Square
London W1G 0AN
tel (020) 7307 2892
email: enquiries@hascas.org
The executive summary of Direct Payments, Independent Living and Mental Health:
An Evaluation can be obtained free of charge from the website or by contacting the address above.
In Control
Programme Co-ordinator
Valuing People Support Team
36 Rose Hill Drive
Mosborough
Sheffield S20 5PN
In Control is a national programme to change the organisation of social care in England so that people who need support can take more control of their own lives and fulfil their role as citizens. The In Control pilot sites include some links which are open to people who use mental health services.
Joseph Rowntree Foundation
The Homestead
40 Water End
York YO32 6WP
tel (01904) 629241
The Joseph Rowntree Foundation has funded a large amount of work on direct payments.
Summary and sometimes full versions of its reports, including Implementing Direct Payments in Mental Health: New Directions, can be obtained free of charge from the website.
National Centre for Independent Living
4th Floor, Hampton House
20 Albert Embankment
London SE1 7TJ
tel (020) 7587 1663
The National Centre for Independent Living publishes a number of useful guides to using direct payments, many of which are available free from its website, including
Direct Payments for Mental Health Service Users/Survivors: A guide to some key issues by Pauline Heslop. The website also has an invaluable discussion forum.
National Institute for Mental Health in England (NIMHE)
National Social Inclusion Programme: Direct Payments Eastern Development Centre
654 The Crescent
Colchester Business Park
Colchester
Essex CO4 9YQ
tel (01206) 287588
fax (01206) 287597
email: robin.murray-neill@nemhpt.nhs.uk
The direct payments project within the National Social Inclusion Programme works through the NIMHE social inclusion leads at each of the eight Care Services Improvement Partnership (CSIP) Regional Development Centres, to promote direct payments as a standard option for people eligible to use mental health services. It provides support to all organisations and individuals with an interest in this.
The National Social Inclusion Programme website, www.socialinclusion.org.uk, will include electronic versions of this guide and the guide for service users and carers.
The Direct Payments Practice Exchange Network will support the implementation of this guide. It is open to all and can be accessed by joining the NIMHE Knowledge Community:
or by contacting the address above. NIMHE is part of CSIP
Social Care Institute for Excellence (SCIE)
Goldings House
2 Hays Lane
London SE1 2HB
tel (020) 7089 7102
SCIE has published Direct Payments: Answering Frequently Asked Questions, a guide for practitioners and their managers, finance managers and senior managers. It offers creative and innovative examples of how the legislation on direct payments can be successfully applied and answers a range of frequently asked questions. This guide contains a large number of practical examples on every aspect of direct payment provision and use. It should be read in conjunction with this guide to action. It is available from SCIE at the address above.
Additional literature not referred to in the text
Butt, J, Bignall, T and Stone, E (2000) Directing Support: Report from a workshop on direct payments and black and minority ethnic disabled people, Joseph Rowntree Foundation/YPS, York.
Commission for Social Care Inspection (2004) Direct Payments: What are the barriers? CSCI, London.
Gillinson, S, Green, H and Miller P (2005) Independent Living: The right to be Equal Citizens, Demos, London available from www.demos.co.uk
Hasler, F (2003) Clarifying the Evidence on Direct Payments into Practice, NCIL, London available from www.ncil.org.uk
Hasler, F and Stewart, A (2004) Making direct payments work: Identifying and overcoming barriers to implementation, JRF Research into Practice Series, Pavilion, Brighton.
Leece, J (2003) Direct Payments, Practitioners Guide Series, Venture Press, Birmingham.
Maglajlic, RA, Bryant, M, Brandon, D and Given, D (1998) Direct payments in mental health a research report, Breakthrough, 2 (3).
Mental Health Alliance (2005) Towards a better Mental Health Act: The Mental Health Alliance Policy Agenda available from www.mentalhealthalliance.org.uk
National Institute for Mental Health in England (2005) NIMHE Guiding Statement on
Recovery, January available from www.nimhe.org.uk
Took, M (2002) Advance directives, statements and agreements and crisis cards, Rethink Policy Statement 51, November.
References
1 Department of Health (2005) Independence, Well-being and Choice: Our vision for the future of social care for adults in England, DH, London.
2 Department of Health (2003) Direct Payments Guidance: Community Care, Services for Carers and Childrens Services (Direct Payments) Guidance England 2003, DH, London, September.
3 See, for example, Coventry Independent Living Group (CILG) Statement, in Barnes, C, McCarthy, M and Comerford, S (eds) (1996) Assessment, Accountability and Independent Living: Confirmation and Clarification of a Disability Led Perspective, The Report of a Conference organised by CILG and Coventry Social Services Department,Coombe Abbey, Coventry, 2324 May 1995. See also Prime Ministers Strategy Unit(2005) Improving the Life Chances of Disabled People, Cabinet Office, London.
4 Department of Health (1999) Effective care co-ordination in mental health services: modernising the Care Programme Approach. A Policy Booklet, DH, London.
5 Community Care, Services for Carers and Childrens Services (Direct Payments) (England) Regulations 2003.
6 According to the Community Care, Services for Carers and Childrens Services (Direct Payments) (England) Regulations 2003, a person is excluded by virtue of the Mental Health Act 1983 if:
d) placed under guardianship in pursuance of
(i) an application made in accordance with section 7 of the 1983 Act; or
(ii) an order made under section 37 of the 1983 Act;
e) absent from hospital with leave given in accordance with section 17 of the 1983 Act;
f ) subject to after-care under supervision within the meaning of section 25A of the 1983 Act;
g) a condition imposed in accordance with section 42(2) or 73(4) (including such a condition which has been varied in accordance with section 73(5) or 75(3)) of the 1983 Act.
7 See ref. 1 above.
8 Ladyman, S (2004) Transcript of speech by Health Minister Stephen Ladyman MP at New Directions in Direct Payments for People who use Mental Health Services,
Joseph Rowntree Foundation/Health and Social Care Advisory Ser