Inspiration In Times Of Desperation

The Winding Road That Led Us To Asperger's Syndrome

Follow my blog at:    http://aspergersyndromeawareness.blogspot.com/

Welcome to my site. I created this site to raise awareness for Asperger's syndrome and to promote my new book I am currently writing.  My book is about my son who has Asperger's syndrome.  At one year old he was progressing normally and then by two years old he began regressing and was not talking. After many tests it was discovered at four years old that he had a brain tumor. After going through 2 surgeries to remove the brain tumor I thought that was the end of the story.... unfortunately alot of the symptoms he exhibited never went a way and a few years later he was diagnosed with Asperger's syndrome.  My book talks about the ups and downs and the emotional and financial challenges involved in raising a child with autism. I also reflect on my faith through all of these challenges. Within the book I discuss the challenges of finding the right school, advocating for my son, and the challeges he faces in school. Johnathon is now thirteen years old and although some things are an uphill battle, he is doing great. I hope this book can help those in my shoes.  There are many books that discuss what Asperger's syndrome is...I wanted to take an honest candid look at the challenges he has faced personally and we have faced as his parents trying to do our best raising our son. Check back here frequently as I will be adding different things. I am looking for the right publisher for my book, if you are interested in publishing/promoting my book just let me know!

Be sure to sign my guestbook and let me know what you think.  Any ideas to make my site better would be very much appreciated.

 

 

I learned that when we are in our deepest grief, when we feel farthest from God, this is when He is closest, and when we are most open to His restoring power.

                                              

 

 

 

 

 

 

 

The Misunderstood Child

I am the child that looks healthy and fine

I was born with ten fingers and toes

But something is different, somewhere in my mind

And what that is, nobody knows

I am the child that struggles in school

Though they say that I'm perfectly smart

They tell me I'm lazy - can learn if I try

But I don't seem to know where to start

I am the child that won't wear the clothes

Which hurt me or bother my feet

I dread sudden noises, can't handle most smells

And tastes - there are few foods I'll eat

I am the child that can't catch the ball

And runs with the awkward gait

I am the one chosen last on the team

And I cringe as I stand there and wait

I am the child with whom no one will play

The one that gets bullied and teased

I try to fit in and I want to be liked

But nothing I do seems to please

I am the child that tantrums and freaks

Over things that seem pretty trite

You'll never know how I panic inside

When I'm lost in my anger and fright

I am the child that fidgets and squirms

Though I'm told to sit still and be good

Do you think that I choose to be out of control?

Don't you know that I would if I could?

I am the child with the broken heart

Though I act like I don't really care

Perhaps there's a reason God made me this way

Some message he sent me to share

For I am the child that needs to be loved

And accepted and valued too

I am the child that is misunderstood

I am different - but look just like you

By Kathy Winters 2003